Table 1.
Disposition and success of updating vital status through manual record review, phone tracking, and physical tracking amongst patients newly diagnosed with Kaposi sarcoma in four countries in sub-Saharan Africa
| AMPATH - Kenya | ISS - Uganda | Lighthouse- Malawi | UATH & NHA - Nigeria | Overall | |
|---|---|---|---|---|---|
| Patients diagnosed with Kaposi sarcoma | 678 | 173 | 314 | 57 | 1222 |
| Presumed LTFU in EMR (D1 in Fig. 1) | 249 | 80 | 75 | 36 | 440 |
| Reclassification after manual review of LTFU in EMR | |||||
| Not truly LTFU: Vital status determined via manual review (N1b in Fig. 1) | 16 | 1 | 1 | 0 | 18 |
| Truly LTFU but vital status determined by repeat later review of records (N1a in Fig. 1) | 11 | 0 | 2 | 11 | 24 |
| Truly LTFU: Vital status missing after review of all records (D2 in Fig. 1) | 222 | 79 | 72 | 25 | 398 |
| Disposition of those who appear LTFU in EMR (D1 in Fig. 1) | |||||
| Vital status updated by manual records review | 27/249 (11%) | 1/80 (1.3%) | 3/75 (4.0%) | 11/36 (31%) | 42/440 (9.6%) |
| Vital status updated by phone contact alone | 83/249 (33%) | 10/80 (13%) | 3/75 (4.0%) | 15/36 (42%) | 111/440 (25%) |
| Vital status updated by physical tracking | 124/249 (50%) | 47/80 (59%) | 22/75 (29%) | 3/36 (8.3%) | 196/440 (45%) |
| Vital status not updated: consent available | 15/249 (6.0%) | 22/80 (28%) | 37/75 (49%) | 7/36 (19%) | 81/440 (18%) |
| Vital status not updated: consent not available | 0/249 (0%) | 0/80 (0%) | 10/75 (13%) | 0/36 (0%) | 10/440 (2.3%) |
| Disposition of those who were truly LTFU (N1a + D2 in Fig. 1) | |||||
| Vital status updated by manual records review | 11/233 (4.7%) | 0/79 (0%) | 2/74 (2.7%) | 11/36 (31%) | 24/422 (5.7%) |
| Vital status updated by phone contact alone | 83/233 (36%) | 10/79 (13%) | 3/74 (4.1%) | 15/36 (42%) | 111/422 (26%) |
| Vital status updated by physical tracking | 124/233 (53%) | 47/79 (59%) | 22/74 (30%) | 3/36 (8.3%) | 196/422 (46%) |
| Vital status not updated: consent available | 15/233 (6.4%) | 22/79 (28%) | 37/74 (50%) | 7/36 (19%) | 81/422 (19%) |
| Vital status not updated: consent not available | 0/233 (0%) | 0/79 (0%) | 10/74 (14%) | 0/36 (0%) | 10/422 (2.4%) |
| Disposition of those truly LTFU not found by manual records review (D2 in Fig. 1) | |||||
| Vital status updated by phone contact alone | 83/222 (37%) | 10/79 (13%) | 3/72 (4.2%) | 15/25 (60%) | 111/398 (28%) |
| Vital status updated by physical tracking | 124/222 (56%) | 47/79 (59%) | 22/72 (31%) | 3/25 (12%) | 196/398 (49%) |
| Vital status not updated: consent available | 15/222 (6.8%) | 22/79 (28%) | 37/72 (51%) | 7/25 (28%) | 81/398 (20%) |
| Vital status not updated: consent not available | 0/222 (0%) | 0/79 (0%) | 10/72 (14%) | 0/25 (0%) | 10/398 (2.5%) |
| Disposition of those truly LTFU who were physically sought after in the community (D3 in Fig. 1) | |||||
| Vital status updated by physical tracking | 124/131 (95%) | 47/69 (68%) | 22/35 (63%) | 3/8 (38%) | 196/243 (81%) |
| Vital status not updated | 7/131 (5.3%) | 22/69 (32%) | 13/35 (37%) | 5/8 (63%) | 47/243 (19%) |
| Success of tracking using combination of methods among those who consented and had sufficient information for tracking | |||||
| Records, phone contact & physical trackinga | 218/225 (97%) | 57/79 (72%) | 27/40 (68%) | 29/34 (85%) | 331/378 (88%) |
| Phone contact & physical trackingb | 207/214 (97%) | 57/79 (72%) | 25/38 (66%) | 18/23 (78%) | 307/354 (87%) |
LTFU denotes lost to follow-up; EMR denotes electronic medical records; AMPATH denotes Academic Model Providing Access to Healthcare; ISS denotes Immune Suppression Syndrome; UATH denotes University of Abuja Teaching Hospital and NHA denotes National Hospital of Abuja
a Success of tracking using all information available from the manual records review, telephone, and field tracking amongst those truly LTFU and who gave consent to be sought after. This is (N1a + N2 + N3) / (D1-N1b-NC-IL) in Fig. 1
b Success of tracking using information available from telephone and physical tracking amongst those truly LTFU, not updated by manual review, and who gave consent to be sought after. This is (N2 + N3) / (D2-NC-IL) in Fig. 1