Table 2.

Themes, Subthemes and Exemplary Quotes Describing SLE Patients’ Desired Outcomes

Themes and Subthemes	Exemplary Quotes
Reduction in flares Reduction in physical symptoms Reduction in hospitalizations	“And sometimes when I wake up the joints just locked, and it takes me a while” “It was so painful like I said with the knives sticking in it, turning it and grinding in the bone. That’s the most severe flares up. I don’t like having those.” “To me I would love to be where I don’t have flares but I doubt that will happen.” “I did anything to keep from coming to the hospital. And if it (the flare) was really bad, I will come then.”
Maintenance of normal activities	“I know I’m never going to be the way I was before. But just as long as I can continue to be on the medication and they work and that I can get up every single day and get on that MARC train and go to my job.” “You know those are the things that I should be able to do, I should be able to make dinner for my wife. I should be able to go for an art fair; We should be able to have the same life as any other couple can experience but we have limitations”
Minimization of treatment side effects	“The medications that we have access to that helps maintain and control our Lupus have all these horrific side effects so I mean I wish there were other treatment options that didn’t create other problems”
Prevention of organ damage	“So one of my organs already having problem but you know, ... I just hope it doesn’t affect something else.” “My kidneys…that shut down and that’s it.”
Finding a cure	“I rather have my cure than a treatment”