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. Author manuscript; available in PMC: 2018 Oct 1.
Published in final edited form as: Int J Med Inform. 2017 Jul 24;106:48–56. doi: 10.1016/j.ijmedinf.2017.07.002

Table 1.

Selected data sources for AD research.

Data source Population Number of patients Kind of data elements
Alzheimer’s Disease Neuroimaging Initiative (ADNI) 59 sites in USA

  • ADNI1: 200 AD, 400 MCI, 200 HC

  • ADNI GO: 200 EMCI, 500 HC, and 400 MCI (from ADNI1)

  • ADNI2: 200 AD, 150 LMCI, 350 EMCI (200 from ADNI GO), 450– 500 CN and MCI (from ADNI1) and 150 HC

 Demographic, imaging, genetics, clinical data
AddNeuroMed study 6 sites in Europe 378 subjects (130 AD, 131 MCI, 117 HC) Demographic, imaging
Mayo Clinic Study of Aging Olmsted County, Minnesota, USA 2719 subjects (402 dementia) Demographic, imaging, genetics, clinical data
ZARAgoza DEMentia DEPression (ZARADEMP) study Zaragoza, Spain

  • Zarademp I: 4803 participants

  • Zarademp II: 3237 participants

  • Zarademp III: 2403 participants

 Demographic, cognitive measures, physical measures, questionnaires
Electronic Health Records Clinical practice research datalink, UK 3896 AD, 7792 HC Medical resources utilization (consultation, specialty referral, length of hospitalization)