Column A Topics covered in interviews, data from which fed into overarching themes/mind maps	Column B Initial and overarching themes developed from the pen portraits around which the data were organized and displayed in the mind maps. One mind map was used for each theme	Column C The themes after refinement through the thematic analysis, and the mind‐maps/overarching theme (in brackets) from which these were drawn
Background and circumstances of the parent, child and family Preparing for and undertaking the procedures Experience of undertaking the procedure Managing their child's reactions Perceived impact Support needs Advice and suggestions for others	(A) How did parents come to have responsibility for the procedure (B) Training and preparation for the procedures (C) What is it like for the parent to carry out these procedures (D) Perceived acceptability of having this responsibility (E) Managing the situation (self, child, siblings, environment, spousal divisions of responsibility) (F) Implications for the parent‐child relationship (G) On‐going support	Emotional experiences and responses (C, D, E) Making sense of the role (A, C, D) Changes in experience over time (C, D, E) The added demands of the role (C, E) Associated support needs (B, G, C, E) (Note: data from theme F are not presented in this paper)