Table 2.
Themes from four open-format survey questions.
| Question | Themes | Examples |
|---|---|---|
| How is your tracking related to managing or treating your mental illness? (n = 19) [conditional question] | Correlation between behaviors and mental illness | “I track my yoga workouts, and I do yoga specifically to help manage my anxiety and stress.” (P212) |
| Indirect measurement of mental health | “trying to understand impact of sleep; exercise diet on mood.” (P232) | |
| Treatment tracking (medication, schedule) | “...I do my best to track which medications I have taken when.” (P52) | |
| Adjustments | “I track my period so that I know how to increase my medication doses. About a week before my period shout start, I take a higher dose of my anxiety medication.” (P243) | |
| Triggers; finding signals that something is out of equilibrium | “Tracking exercise/sleep and caffeine intake to minimize triggers.” (P127) | |
| How is your tracking related to managing or treating your chronic illness? (n = 13) [conditional question] | Measuring a physical indicator (status, progress) | “Need to track blood glucose and [blood] pressure to ensure diabetes and hypertension are both controlled.” (P139) |
| Decision-making (lifestyle, medication) | “Have to make sure my blood pressure stays below a certain number while also making healthy life decisions.” (P219) | |
| Managing schedules | “Blood tests and… regular medications.” (P267) | |
| Symptom control | “Checking glucose levels to ensure they remain at a normal level.” (P77) | |
| Hypothesizing about triggers | “I write down all occurrences of headaches in an attempt to figure out the cause.” (P14) | |
| What would you consider your main goal or motivation for tracking? (n = 269) | Understanding personal limits or ranges | “To know how strong I am so I don’t hurt myself, but keep progressing at a maximum speed toward getting stronger.” (P153) |
| Sustainability of behaviors and goals (setting the right goal, expectations, predictions) | “Figuring out what I can do to decrease my weight (i.e. what works).” (P138) | |
| Hypothesis testing & understanding relationships | “I’d like to be able to prevent migraines by understanding my set of triggers as well as possible.” (P135) | |
| Motivation through data (rewards, competition, fun) | “Keeps me going to the gym so that I can fill progress bars.” (P49) | |
| Performance | “Keeping track of my running pace and mileage - to get faster and go longer.” (P58) | |
| Social goals | “Competition with friends.” (P68) | |
| Appearance-related goals | “A personal drive to look my very best.” (P21) | |
| Being mindful about health | “To…be aware of my health.” (P182) | |
| Improvements vs. maintenance | “Losing weight at first, then just generally staying healthy and eating right once I noted it made me feel better in general.” (P3) | |
| What was it [in the data] that you felt reflected something negative about you? (n = 97) [conditional question] | Disconnect between data and one’s reaction to the data | “I felt that the results were not to the best of my ability even though each workout was... I was disappointed in the [amount of] activity I could achieve.” (P43) |
| Social pressures and stigma; embarrassment | “At times I felt embarrassed for having to be so dependent on my large amount of medicines.” (P7) | |
| Guilt and disappointment | “I felt unhappy with how I slipped into unhealthy eating habits and how it reflected in my body.” (P92) | |
| Laziness (physical activity related, not productivity) | “Sometimes my weight increases (if [I] skip [going to the] gym for a while or eat a lot), so it reflects laziness/lack of seriousness on my part.” (P64) | |
| Lack or reversal of progress and gains, despite effort; failure to achieve a goal | “I felt the graph of my progress showed how I reversed on my progress.” (P182) | |
| Lack of control over changes; lack of self-control | “Sometimes I splurged on high-calorie food.” (P63) | |
| Inconsistency | “It showed that I wasn't as active as I should be, and that I wasn't consistent in the amount of steps I got each day.” (P148) | |
| Revealing an unhealthy or unexpected habit or behavior | “[I]nitially, I was surprised by how bad my eating habits were and how vastly I had underestimated my calorie intake.” (P3) |