Table 1.
Measure | No. of items | Conceptual evidence | Mode and method of administration | Setting and participants | Considerations |
---|---|---|---|---|---|
Treatment Burden Questionnaire (TBQ)23 , 24 | 15 | Interviews, open-ended questions, and literature review | Self-administered; paper and pencil, Web | French language: France; 6 clinical sites; 502 with at least 1 condition requiring medical follow-up in last 6 months English language: Multi-country; members of PatientsLikeMe internet platform; 610 adults with 1 or more chronic conditions |
Currently being adapted for use in other languages |
Patient Experience with Treatment and Self-management (PETS)20 , 26 | 48 | Semi-structured interviews and focus groups with chronically ill patients; systematic literature review of measures | Self-administered; paper and pencil | USA; 2 clinical sites; 332 adults patients with 2 or more chronic conditions | Can be adapted for computer administration; number of items may change with further testing |