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. 2017 Jul 11;32(10):1141–1145. doi: 10.1007/s11606-017-4117-8

Table 1.

Description of Validation Methods

Measure No. of items Conceptual evidence Mode and method of administration Setting and participants Considerations
Treatment Burden Questionnaire (TBQ)23 , 24 15 Interviews, open-ended questions, and literature review Self-administered; paper and pencil, Web French language: France; 6 clinical sites; 502 with at least 1 condition requiring medical follow-up in last 6 months
English language: Multi-country; members of PatientsLikeMe internet platform; 610 adults with 1 or more chronic conditions
Currently being adapted for use in other languages
Patient Experience with Treatment and Self-management (PETS)20 , 26 48 Semi-structured interviews and focus groups with chronically ill patients; systematic literature review of measures Self-administered; paper and pencil USA; 2 clinical sites; 332 adults patients with 2 or more chronic conditions Can be adapted for computer administration; number of items may change with further testing