Table 1.

Summary of responses extracted from the idiopathic pulmonary fibrosis focus groups (n = 13)

Category (domain)	Responses
Effectiveness	Stable health
	Stable long capacity
	Stable disease progression
	Longer life expectancy
	Reduced coughing
Side effects	Coughing
	Dry mouth
	Loss of appetite
	Nausea
	Diarrhoea
	Photosensitivity (skin burn)
	Sweating
	Dry skin
	Rash
	Muscle pain
	Tiredness
	Low energy levels
	Sleepiness
Ease of use	Inconvenient packaging
	Restricted alcohol use
	Need to plan meals
	Frequent intake
Impact on everyday life	Physical
	Prevent lung transplantation
	Feeling better
	Being able to do things
	Emotional
	More positive outlook
	Social
	Not able to go on holiday and enjoy the sun (due to photosensitivity)
	Not able to go outside on a sunny day (due to photosensitivity)
	Other
	Continuity of life through stable health
Other	Exhaustion (symptom of the disease)
	Shortness of breath when being active (symptom of the disease)
	Difficult to be active (symptom of the disease)
	Limited oxygen leading to headache (symptom of the disease)
	Good service from the pharmacist [home delivery] (process aspect of care)