Table 2.
Summary of responses extracted from the atypical haemolytic uraemic syndrome interviews (n = 4)
| Category | Responses |
|---|---|
| Effectiveness | Recovery of the body |
| Stable health | |
| Staying alive | |
| Prevent recurrence of disease | |
| More energy | |
| Side effects | Hair loss |
| Bruising | |
| Vomiting | |
| Nausea | |
| Tremor | |
| Muscle pain | |
| Pain in the legs | |
| Fatigue | |
| Blurry vision/vision impairment | |
| Lack of energy | |
| Moody | |
| Risk of meningitis | |
| Risk of infections | |
| Ease of use | Frequency of hospital visits |
| Intravenous insertion | |
| Administration not possible at home | |
| Impact on everyday life | Physical |
| Better fitness levels | |
| Feeling better/less sick | |
| Return to ‘old’ life before illness | |
| Emotional | |
| Life changing/avoiding death | |
| Unknown long-term harms of treatment (worry) | |
| Feeling protected against the disease (reassurance) | |
| Social | |
| Participate in family life | |
| Participation in society | |
| Avoiding busy public spaces | |
| Active social life | |
| Preventing dialysis or kidney transplant | |
| Other | |
| Need for immediate access to antibiotics | |
| Avoiding treatments with increased risk of infection | |
| Change diet (avoid certain foods) |