TABLE 1.
Characteristics of children with special healthcare needs ages 12–17 years with and without heart problems, National Survey for Children with Special Health Care Needs, United States, 2009–2010
| Parental report of a heart problem
|
P valuea | ||
|---|---|---|---|
| Yes N =724 Weighted %, 95% CI |
No N =14 215 Weighted %, 95% CI |
||
| Total | 5.3 (4.7, 6.1) | 94.7 (93.9, 95.3) | |
|
| |||
| Sex | .007 | ||
| Male | 47.2 (40.6, 53.9) | 57.0 (55.5, 58.5) | |
| Female | 52.8 (46.1, 59.4) | 43.1 (41.6, 44.5) | |
|
| |||
| Age (years) | .15 | ||
| 12–13 | 30.2 (24.5, 36.5) | 33.4 (32.0, 34.8) | |
| 14–15 | 29.1 (23.3, 35.6) | 32.7 (31.3, 34.1) | |
| 16–17 | 40.8 (34.3, 47.6) | 33.9 (32.5, 35.3) | |
|
| |||
| Race/ethnicity | .09 | ||
| White, NH | 65.3 (57.8, 72.0) | 66.3 (64.8, 67.8) | |
| Black, NH | 10.6 (7.3, 15.0) | 13.6 (12.6, 14.8) | |
| Hispanic | 19.5 (13.8, 27.6) | 13.0 (11.8, 14.3) | |
| Otherb | 4.7 (2.9, 7.7) | 7.1 (6.4, 7.8) | |
|
| |||
| Poverty statusc | .43 | ||
| <100% FPL | 21.1 (15.8, 27.6) | 18.3 (17.1, 19.5) | |
| 100%–199% FPL | 23.8 (17.8, 31.1) | 20.4 (19.2, 21.7) | |
| 200%–399% FPL | 26.1 (21.2, 31.8) | 29.6 (28.3, 30.9) | |
| ≥400% FPL | 29.0 (23.8, 34.8) | 31.8 (30.5, 33.1) | |
|
| |||
| Impact on activities | <.001 | ||
| None | 18.9 (14.7, 24.0) | 36.5 (35.1, 37.9) | |
| Moderate | 38.1 (31.9, 44.6) | 38.5 (37.1, 40.0) | |
| Great | 43.1 (36.4, 50.0) | 25.0 (23.7, 26.3) | |
|
| |||
| No. of comorbiditiesd | <.001 | ||
| 0 | 4.0 (2.6, 6.1) | 5.4 (4.8, 6.1) | |
| 1–2 | 32.6 (26.7, 39.2) | 47.4 (46.0, 48.9) | |
| 3 | 10.9 (8.1, 14.5) | 16.3 (15.2, 17.4) | |
| ≥4 | 52.5 (45.8, 59.1) | 30.9 (29.5, 32.3) | |
|
| |||
| Attended well-child visit in last 12 months | .97 | ||
| Yes | 90.0 (84.3, 93.8) | 89.9 (89.0, 90.7) | |
| No | 10.0 (6.3, 15.7) | 10.1 (9.3, 11.0) | |
|
| |||
| Medical homee | .03 | ||
| Yes | 37.1 (31.1, 43.4) | 44.5 (43.0, 45.9) | |
| No | 62.9 (56.6, 68.9) | 55.5 (54.1, 57.0) | |
|
| |||
| Insurance coverage | .15 | ||
| Any private | 62.2 (54.9, 69.0) | 67.8 (66.3, 69.2) | |
| Public | 37.8 (31.0, 45.1) | 32.2 (30.8, 33.7) | |
|
| |||
| Provider treats only children | .001 | ||
| Yes | 75.6 (69.3, 80.9) | 65.3 (63.9, 66.7) | |
| No/missing | 24.4 (19.1, 30.7) | 34.7 (33.3, 36.1) | |
|
| |||
| Special healthcare needsf | |||
| Needs medicine prescribed by a doctor | 84.1 (82.9, 85.2) | 77.2 (70.9, 82.5) | .03 |
| Needs more care than most children of same age | 44.0 (42.6, 45.5) | 63.2 (56.4, 69.5) | <.001 |
| Limited in ability to do things most children of same age do | 23.4 (22.1, 24.7) | 44.8 (38.1, 51.6) | <.001 |
| Needs special therapy | 14.9 (13.9, 16.0) | 25.9 (20.5, 32.1) | <.001 |
| Needs treatment or counseling | 36.1 (34.6, 37.5) | 40.4 (34.0, 47.2) | .21 |
|
| |||
| Number of special healthcare needs | <.001 | ||
| 1 | 46.0 (44.5, 47.4) | 30.2 (24.8, 36.3) | |
| 2 | 23.9 (22.6, 25.2) | 20.3 (15.0, 26.9) | |
| 3 | 16.0 (15.0, 17.1) | 24.6 (19.1, 31.0) | |
| 4 | 10.0 (9.1, 11.1) | 17.6 (12.9, 23.5) | |
| 5 | 4.1 (3.6, 4.7) | 7.4 (5.0, 10.8) | |
CI, confidence interval; CSHCN, children with special healthcare needs; FPL, federal poverty level; NH, non-Hispanic.
Chi square P value.
All other includes respondents identified as Asian, Alaskan Native, American Indian, Native Hawaiian, Pacific Islander, or mixed race.
Based on US Department of Health and Human Services poverty guidelines.
Comorbidities include attention deficit disorder or attention deficit hyperactivity disorder, depression, anxiety, behavioral or conduct problems, autism or an autism spectrum disorder, developmental delay, an intellectual disability or mental retardation, asthma, diabetes, epilepsy or seizure disorder, migraines or frequent headaches, blood problems, cystic fibrosis, cerebral palsy, muscular dystrophy, Down syndrome, arthritis or joint problems, allergies, and head injury, concussion or traumatic brain injury.
Meets Maternal and Child Health Bureau criteria for a medical home.
Special healthcare needs eligibility for the National Survey of Children with Special Health Care Needs is based on having one or more of the following five conditions: needing prescription medicine, having more healthcare encounters than other children their age, having limitations compared to other children their age, needing physical, occupational, or speech therapy, or having an emotional, developmental or behavioral problem in need of counseling or treatment. To be classified as special healthcare needs, these conditions must be related to a medical, behavioral, emotional, developmental, or other health condition that lasts or is expected to last 12 months or longer.