TABLE 2.
Associations between demographic characteristics and receipt of transition planning among children with special healthcare needs ages 12–17 years with heart problems, National Survey for Children with Special Health Care Needs, United States, 2009–2010
| Transition-planning discussions
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|---|---|---|---|---|---|---|---|---|
| Discussed shift to adult providera
|
Discussed adult healthcare needs
|
Discussed health insurance as an adult
|
CSHCN usually/always encouraged to take responsibility
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| Weighted %, 95% CI | aPR (CI) | Weighted %, 95% CI | aPR (CI) | Weighted %, 95% CI | aPR (CI) | Weighted %, 95% CI | aPR (CI) | |
| Sex | ||||||||
| Male | 22.3 (15.0, 31.8) | 1.0 | 54.0 (44.8, 63.0) | 1.0 | 28.3 (21.5, 36.2) | 1.0 | 92.4 (88.1, 95.3) | 1.0 |
| Female | 23.6 (16.1, 33.1) | 1.07 (0.68, 1.69) | 44.5 (35.2, 54.3) | 0.84 (0.65, 1.09) | 24.8 (17.1, 34.4) | 0.86 (0.59, 1.26) | 83.1 (71.4, 90.7) | 1.06 (0.97, 1.16) |
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| Age (years) | ||||||||
| 12–13 | 15.9 (9.1, 26.3) | 1.0 | 41.9 (31.2, 53.4) | 1.0 | 18.2 (11.5, 27.5) | 1.0 | 90.0 (82.8, 94.3) | 1.0 |
| 14–15 | 21.4 (12.0, 35.4) | 1.33 (0.66, 2.68) | 51.8 (39.2, 64.2) | 1.21 (0.87, 1.68) | 23.0 (15.2, 33.3) | 1.08 (0.61, 1.91) | 84.3 (65.5, 93.8) | 0.98 (0.90, 1.08) |
| 16–17 | 31.0 (21.4, 42.5) | 2.06 (1.09, 3.89) | 52.3 (41.6, 62.8) | 1.32 (0.97, 1.79) | 35.0 (25.4, 46.0) | 1.80 (1.14, 2.87) | 89.3 (81.7, 94.0) | 0.99 (0.91, 1.09) |
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| Race/ethnicity | ||||||||
| White, NH | 25.1 (18.7, 32.9) | 1.0 | 48.7 (41.6, 55.8) | 1.0 | 22.7 (17.8, 28.5) | 1.0 | 89.1 (84.3, 92.6) | 1.0 |
| Black, NH | 28.9 (12.2, 54.5) | 1.28 (0.57, 2.88) | 53.3 (35.1, 68.7) | 1.06 (0.70, 1.61) | 40.2 (23.6, 59.5) | 1.79 (1.08, 2.97) | 81.7 (64.5, 91.7) | 0.90 (0.73, 1.10) |
| Hispanic | 14.2 (5.6, 31.4) | 0.61 (0.22, 1.65) | 47.9 (27.8, 68.7) | 1.07 (0.69, 1.66) | 31.3 (15.4, 53.2) | 1.61 (0.95, 2.73) | 86.3 (52.2, 97.3) | 0.96 (0.83, 1.10) |
| Otherb | 14.7 (3.7, 43.4) | 0.58 (0.18, 1.82) | 48.4 (25.7, 71.8) | 1.14 (0.73, 1.79) | 27.6 (12.0, 51.7) | 1.35 (0.65, 2.87) | 94.7 (80.4, 98.7) | 1.08 (0.99, 1.17) |
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| Poverty status (%FPL)c | ||||||||
| <100 | 21.7 (10.3, 40.0) | 1.15 (0.40, 3.37) | 40.4 (26.4, 56.0) | 0.86 (0.51, 1.46) | 29.9 (17.9, 45.5) | 0.96 (0.46, 2.02) | 98.1 (95.9, 99.1) | 1.09 (1.00, 1.19) |
| 100–199 | 20.3 (10.9, 34.7) | 0.91 (0.42, 1.96) | 51.9 (35.2, 68.2) | 1.04 (0.72, 1.51) | 31.0 (17.8, 48.1) | 1.08 (0.53, 2.21) | 76.8 (56.2, 89.5) | 0.87 (0.74, 1.03) |
| 200–399 | 24.4 (14.9, 37.3) | 0.91 (0.42, 1.57) | 52.2 (41.3, 62.9) | 0.99 (0.75, 1.32) | 25.8 (17.8, 35.8) | 0.97 (0.63, 1.49) | 84.9 (75.1, 91.3) | 0.96 (0.86, 1.07) |
| ≥400 | 24.2 (15.2, 36.2) | 1.0 | 50.1 (39.8, 60.4) | 1.0 | 20.8 (14.5, 28.9) | 1.0 | 92.7 (86.4, 96.3) | 1.0 |
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| Impact on activities | ||||||||
| None | 19.3 (11.5, 30.6) | 1.0 | 44.8 (32.5, 57.7) | 1.0 | 22.2 (13.9, 33.5) | 1.0 | 94.6 (87.3, 97.8) | 1.0 |
| Moderate | 23.7 (15.0, 35.4) | 1.18 (0.65, 2.17) | 48.1 (38.0, 58.4) | 1.26 (0.89, 1.79) | 28.7 (19.8, 39.7) | 0.95 (0.57, 1.56) | 94.4 (86.4, 97.8) | 1.04 (0.95, 1.14) |
| Great | 23.6 (15.5, 34.2) | 1.42 (0.78, 2.56) | 51.7 (40.3, 62.9) | 1.44 (1.01, 2.05) | 26.3 (18.5, 36.0) | 0.87 (0.51, 1.48) | 79.5 (67.5, 87.9) | 0.91 (0.82, 1.01) |
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| No. of co-morbiditiesd | ||||||||
| 0 | 40.8 (21.7, 63.1) | 1.0 | 72.7 (51.8, 86.8) | 1.0 | 23.9 (10.6, 45.4) | 1.0 | 93.6 (73.0, 98.8) | 1.0 |
| 1–2 | 18.2 (10.2, 30.4) | 0.38 (0.20, 0.74) | 53.6 (41.8, 65.0) | 0.73 (0.55, 0.98) | 16.1 (10.3, 24.3) | 0.60 (0.26, 1.37) | 97.5 (91.5, 99.3) | 1.06 (0.94, 1.21) |
| 3 | 31.9 (18.6, 49.0) | 0.75 (0.37,1.50) | 44.9 (31.2, 59.4) | 0.59 (0.40, 0.88) | 34.7 (22.1, 49.9) | 1.59 (0.72, 3.51) | 80.6 (66.4, 89.7) | 0.87 (0.71, 1.05) |
| ≥4 | 22.6 (15.1, 32.6) | 0.56 (0.31, 1.02) | 45.3 (35.8, 55.2) | 0.62 (0.45, 0.85) | 31.3 (23.0, 41.1) | 1.43 (0.68, 3.01) | 83.3 (72.6, 90.4) | 0.92 (0.80, 1.06) |
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| Had well-child visite | ||||||||
| Yes | 22.2 (16.9, 28.7) | 0.74 (0.27, 2.03) | 49.3 (42.4, 56.3) | 1.16 (0.71, 1.88) | 26.8 (21.2, 33.3) | 1.06 (0.57, 2.01) | 88.0 (81.2, 92.5) | 1.06 (0.92, 1.22) |
| No | 29.8 (9.5, 63.2) | 1.0 | 46.3 (24.5, 69.7) | 1.0 | 23.2 (10.9, 42.8) | 1.0 | 88.5 (74.0, 95.4) | 1.0 |
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| Medical homef | ||||||||
| Yes | 28.9 (19.8, 40.1) | 1.46 (0.93, 2.30) | 60.0 (50.3, 69.0) | 1.45 (1.16, 1.81) | 31.4 (23.7, 40.3) | 1.83 (1.29, 2.59) | 91.3 (84.9, 95.1) | 1.02 (0.94, 1.11) |
| No | 19.4 (13.2, 27.6) | 1.0 | 42.6 (34.0, 51.5) | 1.0 | 23.5 (16.7, 32.0) | 1.0 | 86.1 (76.9, 92.1) | 1.0 |
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| Insurance coverage | ||||||||
| Any private | 24.8 (18.4, 32.6) | 1.0 | 51.0 (43.8, 58.1) | 1.0 | 22.6 (17.6, 28.4) | 1.0 | 88.5 (83.2, 92.3) | 1.0 |
| Public/none | 19.1 (10.6, 32.2) | 0.71 (0.30, 1.71) | 45.8 (33.3, 58.8) | 0.99 (0.68, 1.44) | 32.8 (22.0, 45.9) | 1.18 (0.68, 2.04) | 87.2 (71.4, 94.9) | 1.02 (0.92, 1.13) |
aPR: adjusted prevalence ratio, adjusted for sex, age, race/ethnicity, poverty status, impact on activities, number of comorbidities, attendance at a well-child visit in the last 12 months, having a medical home, and insurance coverage; CI, confidence interval; CSHCN, children with special healthcare needs; FPL, federal poverty level; NH, non-Hispanic.
Among CSHCN with heart problems whose providers do not also care for adults.
All other includes respondents identified as Asian, Alaskan Native, American Indian, Native Hawaiian, Pacific Islander, or mixed race.
Based on US Department of Health and Human Services poverty guidelines.
Comorbidities only include attention deficit disorder or attention deficit hyperactivity disorder, depression, anxiety, behavioral or conduct problems, autism or an autism spectrum disorder, developmental delay, an intellectual disability or mental retardation, asthma, diabetes, epilepsy or seizure disorder, migraines or frequent headaches, blood problems, cystic fibrosis, cerebral palsy, muscular dystrophy, Down syndrome, arthritis or joint problems, allergies, and head injury, concussion or traumatic brain injury.
Attended visit in last 12 months.
Meets Maternal and Child Health Bureau criteria for a medical home.