Table 2.
NextGen participant motivation: “What are you hoping to learn from being in this study?”a
| Theme | Definition | N = 310 | Example(s) |
|---|---|---|---|
| General information | General health information seeking | 215 (69%) | General curiosity; The more information the better; Son has autism, wants information |
| Reproductive planning | Information seeking related specifically to pregnancy or reproductive planning, or investigation of fertility | 160 (52%) | Information for planning for a family; Reproductive risks; Risks for child with problems; Interested in genetics after multiple spontaneous abortions |
| Support of research | General support of scientific research or advancement of technology | 34 (11%) | On board with helping science; Helping the greater good is important; Contributing to research |
| Unknown | No response or information provided | 18 (6%) | Nothing in particular |
a
Responses not mutually exclusive.