Table 5.

Outcome preferences related to mobility of patients and caregivers and relevant quotations.

Goals	Inpatient Rehabilitation Facility	Skilled Nursing Facility
Walk ss = 21 (88%) c = 13 (87%)	“I wanted to learn how to walk.” (ss17); “I want him to walk.” (c01)	“I wish I could walk better.” (ss03); “Getting her up walking.” (c06)
Movement/mobility ss = 9 (38%) c = 8 (53%)	“My main goal when I went there to rehab was to get up.” (ss23); “I want to get him out of his wheelchair.” (c13)	“move around more freely.” (ss30); “My goals were just to keep him motivated and mobile.” (c12)
Assistive devices ss = 5 (21%) c = 5 (33%)	“I haven’t gotten a scooter, which I could really use.” (ss26); “he needs a wheelchair.” (c13)	“I recommend power chairs as a primary vehicle for outreach.” (ss29); “she gets her[a] good chair or we get her a new one, she’s a lot more self-sufficient.” (c06)
Balance ss = 4 (17%) c = 4 (27%)	“To have good balance while walking.” (ss31); “To get more balance.” (c16)	“You really need to balance one side with the other side.”(ss29);“The balancing.” (c08).
Standing ss = 3 (13%) c = 2 (13%)	“Was to stand properly.” (ss21); “I wanted him to stand up.” (c15)	“If everybody stands up, she’d like to be also doing that.” (c06)
Transportation ss = 1 (4%) c = 1 (7%)	“Sometimes I think of something to do at the last minute and I can’t call Metro. If I call somebody, they’ll say, ‘Yeah, I’ll be down to take you,’ and they don’t show up. That stuff hurts.” (ss39)	“He can’t go anywhere by himself, at all. He has to have a ride.” (c12)
Drive ss = 4 (17%) c = 8 (53%)	“I wanna drive.” (ss02); “it was driving first.” (c16)	“back to driving.” (c03)
Information on mobility/ Realistic expectation ss = 1 (4%) c = 6 (40%)	“I kind of wished I had known how long it would take. When I used to ask questions to doctors about how long is it likely to take before I get some of my sensation back and muscle movements, they always were not able to answer the questions.” (ss20); “My level of expectation was, and this is probably unrealistic as I look back at it, that she’s going to be able to walk out of the hospital the way she was before.” (c07)	None mentioned
Prevention of falls ss = 2 (8.3%) c = 5 (33%)	“I don’t want maybe I fall.” (ss41); “That’s one of the things that I worry about all the time, falling.” (c07)	“she falls in the bathroom..that was our biggest worry.” (c06)
Home accomodations ss = 0 c = 4 (27%)	“Some houses are upstairs which is very risky for somebody like them to be going upstairs all the time. And then some houses don’t have ramps.” (c24)	“..in the shower, in the bathrooms.” (c12)
Transfers ss = 1 (4%) c = 3 (20%)	“Transferring for yourself, is that a goal? Yes.” (ss31); “transferring ... as a caregiver, that was the big thing.” (c23)	“It’s really a more ... just being to get ... transfer from one place to another.” (c06)
Advice on mobility ss = 6 (25%) c = 1 (7%)	“One advice I would like to give is that it does not take a short time to recover from stroke…There are certain things which are there…For example, my stroke was in April 2014, up to now I still cannot walk properly. It means it take more than a year.”(ss22)	“You know if it was walking or their hand you know or their talking you know, tell them to work on that you know and then work on the others.” (ss03); “Depending on their situation as far as if they’re mobile.” (c19)
Increased therapy ss = 1 (4%) c = 0	“I wanted more walking therapy than anybody else in the world.” (ss24)	None mentioned
Dance ss = 1 (4%) c = 0	“I want to dance with my wife.” (ss35)	None mentioned

ss = stroke survivor; c = caregiver