Table 1.
Framework of themes developed from the data
| Added value of public involvement | Prior to study commencing | Validating ideas |
|---|---|---|
| Input in regard to appropriate terminology | ||
| Developing interventions | ||
| Ensuring clarity/user friendliness of written information | ||
| Ensuring appropriate outcomes | ||
| Acceptability of data collection methods/tools | ||
| Alerting to potential ethical/patient safety issues | ||
| Advice regarding research processes such as recruitment/drop out/follow up | ||
| During study | Ensuring research conducted with sensitivity/empathy | |
| Sharing experiences/emphasising value of individual experiences in study | ||
| Planning/designing public involvement | Prior to study commencing | Recruitment to public involvement event |
| Timing | ||
| Venue | ||
| Training/support | ||
| Payment | ||
| Format of sessions | ||
| Facilitation skills | ||
| During study | Training/support | |
| Recruitment to study advisory groups | ||
| Payment | ||
| Contacting members | ||
| Commitment/burden | ||
| After study | Feedback to members on outcome/findings | |
| Role of public members | Prior to study commencing | Proposal development |
| Co-applicant | ||
| Feedback on accessibility of language | ||
| Intended during study | Advice | |
| Public panel | ||
| Project steering group/management panel | ||
| Scrutinise conduct of research | ||
| As patient interviewers | ||
| Involvement in analysis and interpretation | ||
| Review of documentation to be used | ||
| Assist with ethical approval documentation | ||
| Consult regarding any issues regarding recruitment/involvement | ||
| Help with any developing or evolving issues | ||
| Intended after study | Assist with dissemination | |
| Assisting with writing up findings | ||
| Assist with translation into practice | ||
| Valuing public member contributions | Recognising expertise of members | |
| Feeding back | ||
| Value for public members |