Table 3.

Agreement with policy by survey and small group voting^a

	Small group 1 (n=8) n (%)	Small group 2 (n=8) n (%)	Small group 3 (n=6) n (%)	Small group 4 (n=8) n (%)	Small group 5 (n=7) n (%)	Small group 6 (n=5) n (%)	Small group 7 (n=6) n (%)	Small group 8 (n=6) n (%)	Small group 9 (n=5) n (%)	Small group 10 (n=7) n (%)
Medically Actionable
Pre-DD Survey	6 (85.7)	8 (100.0)	6 (100.0)	7 (87.5)	7 (100.0)	4 (80.0)	6 (100.0)	6 (100.0)	4 (80.0)	5 (71.4)
Vote 1	2 (25.0)	8 (100.0)	6 (100.0)	6 (75.0)	7 (100.0)	0 (0.0)	6 (100.0)	6 (100.0)	5 (100.0)	7 (100.0)
Vote 2	1 (12.5)	8 (100.0)	6 (100.0)	2 (25.0)	7 (100.0)	0 (0.0)	5 (83.3)	6 (100.0)	5 (100.0)	7 (100.0)
Post-DD Survey	3 (37.5)	7 (87.5)	6 (100.0)	5 (62.5)	7 (100.0)	5 (100.0)	6 (100.0)	6 (100.0)	4 (100.0)	7 (100.0)
Follow-up Survey	6 (85.7)	7 (100.0)	4 (66.7)	8 (100.0)	6 (85.7)	5 (100.0)	6 (100.0)	6 (100.0)	5 (100.0)	7 (100.0)
Adult Onset Conditions
Pre-DD Survey	0 (0.0)	1 (12.5)	0 (0.0)	1 (12.5)	0 (0.0)	1 (20.0)	0 (0.0)	0 (0.0)	1 (20.0)	2 (28.6)
Vote 1	1 (12.5)	2 (25.0)	5 (83.3)	3 (37.5)	1 (14.3)	4 (80.0)	2 (33.3)	3 (50.0)	2 (40.0)	6 (85.7)
Vote 2	1 (12.5)	2 (25.0)	6 (100.0)	3 (37.5)	0 (0.0)	4 (80.0)	1 (16.7)	3 (50.0)	2 (40.0)	6 (85.7)
Post-DD Survey	2 (28.6)	2 (25.0)	6 (100.0)	4 (50.0)	0 (0.0)	3 (60.0)	1 (16.7)	2 (33.3)	2 (40.0)	6 (85.7)
Follow-up Survey	1 (14.3)	3 (42.9)	0 (0.0)	1 (12.5)	2 (28.6)	1 (25.0)	1 (16.7)	2 (33.3)	2 (40.0)	2 (33.3)
Carrier Status
Pre-DD Survey	1 (12.5)	0 (0.0)	0 (0.0)	1 (12.5)	1 (14.3)	1 (20.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)
Vote 1	0 (0.0)	1 (12.5)	1 (16.7)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	5 (83.3)
Vote 2	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	5 (83.3)
Post-DD	2 (25.0)	0 (0.0)	3 (50.0)	4 (50.0)	0 (0.0)	0 (0.0)	0 (0.0)	0 (0.0)	1 (25.0)	5 (71.4)
Follow-up Survey	0 (0.0)	1 (14.3)	1 (16.7)	1 (12.5)	0 (0.0)	1 (20.0)	0 (0.0)	0 (0.0)	0 (0.0)	1 (14.3)

^aValid percent as not all participants responded to every question. See Table 2 for descriptions of each of the three proposed policies.