Table 1. Demographic characteristics of respondents.
| Total Sample (N = 410) | Adult nephrologists (N = 151) | Pediatric nephrologists (N = 216) | Geneticists (N = 43) | |
|---|---|---|---|---|
| Male | 53.4% | 65.6% | 43.1% | 62.8% |
| Mean age (SD) | 48.3 (9.8) | 46.9 (10.2) | 48.3 (9.3) | 52.8 (9.9) |
| Country | ||||
| 1. Western Europe | 55.4% | 90.1% | 34.7% | 37.2% |
| ○ Belgium | 28.1% | 60.9% | 8.8% | 9.3% |
| ○ Germany | 15.4% | 23.2% | 10.2% | 14.0% |
| 2. Eastern Europe | 6.6% | 2.0% | 8.3% | 14.0% |
| 3. Northern Europe | 12.4% | 0.7% | 17.6% | 27.9% |
| 4. Southern Europe | 16.3% | 6.6% | 22.2% | 20.9% |
| 5. Others | 9.3% | 0.7% | 17.1% | 0.0% |
| Academic work setting | 70.5% | 42.4% | 86.6% | 88.4% |
| Involved in ADPKD research | 32.9% | 31.8% | 33.8% | 32.6% |
| Access to genetic testing for ADPKD | 56.8% | 49.7% | 58.3% | 74.4% |
| Access to genetic counseling for ADPKD patients | 79.8% | 70.2% | 82.4% | 100% |