Table 2.
Aims and participants in studies in the final sample
| Study | Act | Research aim | Population context | Participants |
|---|---|---|---|---|
| Badger (2009)8 | MCA | Explore decision-making | Intellectual disability | 27 participants: 2 staff and 1 family member for each of 9 disabled adults in 3 settings (none of the 9 disabled adults directly involved) |
| Badger & Parnell (2009)9 |
MCA | Explore decision-making | Not described | 24 participants: 6 disabled adults with 2 staff and 1 family member for each |
| Jevon (2014)10 | AWIA | Assess experiences of guardians |
Not described | 193 welfare guardians (27% response rate) |
| Jingree (2015)11 | MCA | Explore decision-making | Intellectual disability | 15 support workers from a single service |
| Killeen & Myers (2004) Ch. 412 |
AWIA | Explore power of attorney and intromission with funds |
General public | 3 individuals who had made a power of attorney and 5 individuals who had applied for intromission with funds (8% response rate) |
| Killeen & Myers (2004) Ch. 513 |
AWIA | Understand the operation of guardianship |
Mixed | 58 professionals, carers, and adults with incapacity involved in 13 guardianship cases – exact composition not reported |
| Manthorpe et al (2012)14 |
MCA | Assess links between personal and professional experiences of dementia |
Dementia | 123 professionals (70 of whom had experience as carers) |
| Mental Welfare Commission (2011)15 |
AWIA | Assess experiences of guardians and supervisors |
Not described | 58 welfare guardians (family or carer) |
| Myron et al (2008)16 |
MCA | Assess staff, family and patient knowledge of capacity |
Mixed | 73 staff, 20 disabled adults, and 6 carers |
| Samsi & Manthorpe (2011)17 |
MCA | Understand how older people planned for their future |
General public | 37 self-identified ‘well’ people aged over 50 years |
| Samsi & Manthorpe (2013)18 |
MCA | Explore decision-making | Dementia | 12 dementia dyads (person with dementia plus their carer) |
| Williams et al (2012)19 |
MCA | Explore decision-making | Mixed | 385 participants, mostly professionals – 5 interviews from the perspective of carers |
AWIA, Adults with Incapacity (Scotland) Act 2000; MCA, Mental Capacity Act 2005.