Table 3. Proxy responses to questions about booklet content and delivery.
| The 3 questions below were asked of all 122 proxies. | No. proxies |
| "The booklet is appropriate for adult friends and family-members of ICU patients." n (%) | |
| Strongly agree | 46 (38%) |
| Agree | 74 (61%) |
| Neither agree or disagree | 0 (0%) |
| Disagree | 2 (2%) |
| Strongly disagree | 0 (0%) |
| "It is important for families of ICU patients to know the information in the booklet." n (%) | |
| Strongly agree | 69 (57%) |
| Agree | 50 (41%) |
| Neither agree or disagree | 2 (2%) |
| Disagree | 1 (1%) |
| Strongly disagree | 0 (0%) |
| "Parts of the booklet are upsetting." n (%) | |
| Strongly Agree | 6 (5%) |
| Agree | 48 (39%) |
| Neither agree or disagree | 7 (6%) |
| Disagree | 49 (40%) |
| Strongly Disagree | 12 (10%) |
| The following question was asked of all proxies who agreed or strongly agreed that it is important for families of ICU patients to know the information in the booklet. | |
| "In your opinion, which pages in the booklet are most important for ICU proxies to know?" (list all pages mentioned)a | Number of mentions |
| Pages with background information about proxy decision-makers | 42 (34%) |
| Pages that address formulating treatment goals | 39 (32%) |
| Tips for being a great proxy and recommended questions to ask doctors | 79 (65%) |
| Contact information for support resources (social work, chaplaincy, etc.) | 21 (17%) |
| The 2 questions below were added to the interview in week 3 of the study and were only asked of proxies who agreed or strongly agreed that it was important for families to know the information in the booklet, generating 97 responses. | |
| "In your opinion, when should ICU proxies receive the information in the booklet?" n (%) | |
| As soon as they arrive in the ICU | 57 (59%) |
| After they’ve had a chance to speak to a doctor about their loved ones care | 33 (34%) |
| Only if their loved one’s health isn’t improving | 6 (6%) |
| Declined | 1 (1%) |
| "In your opinion, what is the best way to share the information in the booklet with ICU proxies?" n (%) | |
| In a face-to-face conversation | 54 (56%) |
| On paper (for example the booklet) | 32 (33%) |
| In a video (for example on an iPad or on YouTube) | 9 (9%) |
| In a conversation on the phone | 2 (2%) |
a While some proxies cited specific page numbers, others cited entire sections of the booklet such as "The goals section" or "The pages with questions to ask the doctors." The number of times individual pages in the booklet were cited is provided in Supplemental information.