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. 2017 Aug 4;7(8):e016267. doi: 10.1136/bmjopen-2017-016267

Table 1.

Data variables

Domain Variables
Patient
demographics and
clinical data
  • Patient ID (unique patient number generated by CPCSSN)

  • Sex

  • Month and year of birth

  • Occupation

  • Highest education

  • Housing status

  • Postal code

  • EMR status—active, deceased, duplicate, inactive, unknown

  • Language

  • Race/ethnicity

  • Deceased tear

  • Date created (date this record was created)

  • Time since last visit—6, 12, 24 or 36 months

  • CPCSSN conditions—yes/no for diabetes, depression, osteoarthritis, COPD, hypertension, dementia, Parkinson's, epilepsy

  • CPCSSN conditions—count (ie, numeric value)

  • Disease case indicator—disease (diabetes, depression, osteoarthritis, COPD, hypertension, dementia, Parkinson's, epilepsy)

  • Disease case indicator—indicator type (billing, encounter diagnosis, health conditions, laboratory result (HbA1C, fasting glucose), medication)

  • Disease case indicator—indicator value (numeric value of HbA1C and/or fasting glucose)

Patient–provider pairing
  • Patient ID (unique patient number generated by CPCSSN)

  • Provider ID (unique provider number generated by CPCSSN; primary provider of patient)

  • Start date

  • End date

Provider information
  • Provider ID (unique provider number generated by CPCSSN)

  • Sex

  • Birth year

Billing data
  • Patient ID (unique patient number generated by CPCSSN)

  • Date created

  • Service date

  • Diagnosis text—cleaned

  • Diagnosis text—original

  • Diagnosis code type (ie, ICD-9, ICD-10)

  • Diagnosis code (ie, 401)

Clinical encounters
  • Patient ID (unique patient number generated by CPCSSN)

  • Provider ID (unique provider number of the attending provider generated by CPCSSN)

  • Encounter date

  • Encounter type—academic clinic, community clinic

  • Reason for visit—cleaned

  • Reason for visit—original

Encounter diagnoses
  • Patient ID (unique patient number generated by CPCSSN)

  • Created date

  • Diagnosis text—cleaned

  • Diagnosis text—original

  • Diagnosis code type (ie, ICD-9)

  • Diagnosis code (ie, 401)

Physical examination data
  • Patient ID (unique patient number generated by CPCSSN)

  • Exam name—systolic BP, diastolic BP, height, weight, BMI, waist circumference, waist to hip ratio (all values)

  • Result—cleaned numeric value

  • Result—original numeric value

  • Unit of measure

  • Most recent value—yes, no

Health condition
  • Patient ID (unique patient number generated by CPCSSN)

  • Created date

  • Onset date

  • Diagnosis text—cleaned

  • Diagnosis text—original

  • Diagnosis code type (ie, ICD-9)

  • Diagnosis code (ie, 401)

Laboratory data
  • Patient ID (unique patient number generated by CPCSSN)

  • Date performed

  • Laboratory name—cleaned text (fasting glucose, glucose tolerance, HbA1C, HDL, LDL, total cholesterol, triglycerides, microalbumin, urine albumin to creatinine ratio, haemoglobin, creatinine, eGFR/GFR)

  • Laboratory name—original text

  • Laboratory result—numeric value

  • Unit of measure

  • Most recent value—yes, no

Medical/surgical procedure
  • Patient ID (unique patient number generated by CPCSSN)

  • Date created

  • Date performed

  • Procedure name—cleaned text

  • Procedure name—original text

Medication records
  • Patient ID (unique patient number generated by CPCSSN)

  • Start date

  • Stop date

  • Medication name—cleaned text

  • Medication name—original text

  • Medication code—ATC code (Anatomical Therapeutic Chemical classification system)

  • Time since (initial prescription)

  • DIN (drug identification number)

  • Strength

  • Dose

  • Frequency

  • Unit of measure

Referral data
  • Patient ID (unique patient number generated by CPCSSN)

  • Date created

  • Date completed

  • Referral name—cleaned text

  • Referral name—original text

Risk factor data
  • Patient ID (the unique patient number generated by CPCSSN)

  • Date created

  • Start date

  • Stop date

  • Most recent—yes, no

  • Risk factor name—cleaned text (smoking, alcohol, diet, exercise, obesity)

  • Risk factor name—original text

  • Status—cleaned (current, never, n/a, not current, past, unknown)

  • Status—original

  • Value—cleaned

  • Frequency

  • Duration

  • End

BMI, body mass index; BP, blood pressure; COPD, chronic obstructive pulmonary disease; CPCSSN, Canadian Primary Care Sentinel Surveillance Network; eGFR, estimated glomerular filtration rate; EMR, electronic medical records; HbA1C, glycated haemoglobin concentration; HDL, high density lipoprotein; ICD, International Classification of Diseases; LDL, low density lipoprotein.