Table 3.
Programme | Year of inception | Approach/methodology | Data sources | Spread | Funding |
US CDC* | 2006 | Passive surveillance approach leveraging existing data sources | Administrative surveys (NHANES) | National | Governmental support |
England QoF | 2006 | An incentive-based system (pay-for-performance system) that required all PCPs to establish a register for adults with CKD stages 3–5 and achieve guideline-concordant treatment targets. | Routine primary care records | National | Governmental support |
CKD-JAC | 2008 | Routine care data across select CKD clinics across Japan | Practice data | National | Japanese Society of Nephrology and Industry |
CKD Queensland Registry | 2009 | Routine clinical care data | Practice data | Regional (state of Queensland) | Research organisations and industry |
CPCSSN-CKD* | 2017 | Passive surveillance using routine practice database | Routine primary care databases | National (multiple regions and territories) | Research organisations and government (PHAC, CIHR) |
*Main database development started in 2005.
CIHR, Canadian Institutes of Health Research; CKD-JAC, Chronic Kidney Disease Japan Cohort; CKD, chronic kidney disease; CPCSSN, Canadian Primary Care Sentinel Surveillance Network; NHANES, National Health and Nutrition Examination Survey; PCP, primary care practice; QoF, Quality and Outcomes Framework; US CDC, US Centres for Disease Control and Prevention CKD Surveillance System.