Table 1.
Summary and brief description of decision aids focused on living donor kidney transplantation (LDKT)
| Decision Aid | Mode of Delivery | Brief Description |
|---|---|---|
| Comprehensive LDKT Education Decision Aids | ||
| Patients’ Readiness to make Decisions about Kidney Disease (PREPARED) | Handbook Mini-book Video Website | Information on overcoming knowledge and financial barriers. Video provides patient testimonials and ‘concerns’ from patients, patient family members, and healthcare professionals. |
| The Big Ask, The Big Give | Print materials Telephone help line Peer mentoring, Online Awareness Campaign Website | Provide ESRD patients, their family and friends, and potential kidney donors resources to learn about LDKT, tools to help those considering donation to make an informed choice, information about the transplant evaluation process and financial aspects of LDKT, and tips for ESRD patients on to find and communicate with a potential living donor. |
| Culturally Sensitive or Audience-Specific Decision Aids | ||
| Living About Choices in Transplantation and Sharing (Living ACTS) | Handbook DVD | Aimed at overcoming communication barriers related to living donor kidney transplantation, that is culturally-sensitive to African Americans. |
| Infόrmate: Inform Yourself About Living Kidney Donation for Hispanics/Latinos | Website | A culturally targeted, interactive, bilingual website aimed to increase knowledge about living donation and transplantation for Hispanic kidney disease patients and their families. |
| Decision Aids for Potential Recipients | ||
| Your Path to Transplant | Computer-Tailored Educational Messages (delivered with or without a Telephonic Health Coach) Brochures Fact Sheets Videos | Computerized program that generates individually-tailored educational messages based on assessments of individual patients’ LDKT readiness, self-efficacy, perceived pros and cons, knowledge, and socioeconomic barriers. Aimed to improve LDKT readiness, self-efficacy, transplant knowledge, and pursuit of LDKT. |
| Explore Transplant @ Home | Text messaging (delivered with or without a Health Coach) Brochures Fact Sheets Postcards Videos | Educational material on kidney transplantation that discuss the advantages of LDKT. Educational materials are mailed to participants and aims at improving patient knowledge, decision making, the balance of perceived pros over cons, and self-efficacy. |
| My Transplant Coach | iOS Application | iOS application that communicates patient-specific predictions on patient survival for different ESRD treatment options through animated videos and individualized charts. Promotes consideration of LDKT and aimed to improve patient empowerment and reduce anxiety. A shared decision aid which provides individualized risk predictions comparing short-term patient survival for kidney |
| iChoose Kidney | Website Smartphone Application | transplantation versus dialysis. iChoose assists providers in discussing treatment options with patients at the start of dialysis, and is available through a website or iOS mobile applications. |
| Decision Aids for Potential Donor Education and Recruitment | ||
| Live Donor Champion | In-person | Training offered to a recruited family member or friend of ESRD patient to serve as a patient advocate. |
| DONOR | Social Media Website (Facebook) | A social media application that provides a platform for the ESRD patient to share their narrative. Application prompts the patient to complete a series of questions that is used to create a story that is easily shared through the patient’s social network. |
| ESRD Risk Tool for Kidney Donor Candidates | Website | The aid is intended for potential living kidney donors. It provides a 15-year estimate and lifetime incidence of the potential donor being diagnosed with ESRD after donation. |
| Decision Aids for Healthcare Providers | ||
| Live Donor KDPI | Website | The Living Donor KDPI was designed to be used by healthcare professionals to determine the transplant recipients risk and allows the comparison of recipient outcomes with different living donors to find the more compatible match. The healthcare professional may use the decision aid to calculate the recipient’s LDKT risk compared to deceased donor kidney transplantation by inputting the potential donor’s clinical factors. |
Abbreviations: ESRD, end stage renal disease; KDPI, kidney donor profile index