Interpersonal influence
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(R12C) “My family’s been asking me a long time to get [a mobile phone]”)
(R13C) “[Wife]’ll jump on me in a quick minute. (laughs) Yeah, she does. She keeps me, ‘Watch out!’ She watches how much salt I eat.”
(R14C) “It hurts [wife’s] feelings sometimes if I don’t eat what she fixes,” describing difficulty following a low-sodium diet.
(R15B ) “It was nice to know somebody else was thinking about me … besides my family and the doctors. It was nice to know that somebody else cared about … little old me.” (Describing care team.)
(R16C) “We had the family come in from North Carolina and we was all together eating and my favorite potato chips was laying there and my cheese and I said well you know I’m going to get a taste or two and I ate a bit more than I should have, so.”
(R17A) “Using [health technology] at [business] school has been really fun because my classmates are super excited about it…I’m like “hey guys it’s like big data analytics like internet of everything…”
(R18C) “It’s hard to go anywhere. I feel like I take a urinal with me.” (Describing concerns about being judged by others when outside of the home and needing to urinate after taking diuretic medications)
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Cultural influence
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(R19A) I come from like a pretty hypochondriac family so, being very, very attuned to health related stuff is something that I grew up with… my mom believes I [had asthma as a kid] so, it’s funny to show her [now that I really have asthma]… I didn’t grow up in a place where you kind of ignored health stuff, go to the doctor at the drop of a dime. So, having [device] just kind of feeds into that.
(R20A) “Everyone in my family has smartphones and everything is electric in our house. Our power went out a few days ago and we can even open the blinds cause their electric, so we’re really electronic based so, it’s really good.”
(R21C) “Daddy was (a) hard worker, never missed a day of work all his life… therefore, we always set our patterns to be like our daddy, go to work and take care of your family… And so when I got sick, it was like you know, why am I getting sick. I didn’t feel it coming on.”
(R22C) “We’re from Trinidad so food is highly seasoned. There’s just no way around it. If you eat it, it has salt in it…”
(R23C) “After being in the military ain’t too much that (is challenging),” stated one patient, but later described a downside of military culture: “…(in) the Army, you didn’t show a weakness and stuff like that” (explaining his delay in being diagnosed).
(R24A) “I definitely think kind of the culture I’m in being that teens are very technology focused and I think that contributed in a big way like around people who love this kind of stuff and that’s something that I’m very focused on how to integrate apps into my life…”
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Social support and engagement
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(R25B) “But I also have the two caregivers. Like I said, one is my niece, and one is my sister. And since I lost my second leg, they won’t leave me alone at night at all. So one of them spends the night with me…”
(R26B) “My wife did everything for me, so I didn’t have to worry about anything. If I did, I’d be in big trouble. I’d probably be back in the hospital. … In my case, usually my wife was there … to take notes or whatever, because my memory, I think it’s reached its limits…”
(R27B) “…And our other daughter … that we stayed with until we found the place…” (patients home had burned)
(R28A) “With my kids. First there was ‘Oh you gotta do that again, dad?’ And then they’re like, ‘Hey! Your phone’s beeping. Did you forget?’ So it was a nice reminder that the kids were helping me out when I was starting this… It was definitely a positive. It got them instead of just something that I did, it became a part of the family kind of weirdly.”
(R29A) “[Having someone to say] ok you’re trying to make some progress here so alright well if you’re having a hard time maybe I’ll remind you or did you check your data… Were you having a bad day? Was it the weather? Was it something in the air? [H]aving somebody helping you [whose] on board [with] it makes it so much easier and I didn’t really have that so a lot of that was all on me.”
(R30C) “I stay in this house every day, watching the four walls, and get up. You eat. You lie down. You sleep. You watch TV. You cook some food and go outside. I sit out; I watch cars passing the road. That is boring. Real boring. I can’t take that.”
(R31A) “I live with smokers [and smoke is an asthma trigger for me]. Ho-ooh. That’s kind of the problem… I’ve been trying to explain that to people but they don’t really seem to realize that smoke clings to clothing.”
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