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. 2017 Nov 2;12:171. doi: 10.1186/s13023-017-0718-x

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© The Author(s). 2017

Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

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Fig. 1 — PCOMs bring value across all healthcare stakeholders. Evaluating value from the perspective of the patient can bring substantial benefit for all healthcare stakeholders. Because they are grounded in what matters most to patients, PCOMs help translate care and/or observed treatment effect into an ‘interpretable’ measure of patient benefit. By doing so, PCOMs bring value to all healthcare stakeholders involved. PCOMs may be used for several purposes, such as: efficacy endpoints in clinical trials, outcomes measures in registries, guides to treatment choices for daily care, or tools to monitor care delivery