Table 2.
Survey Responses
Agree or Strongly Agree | ||||
---|---|---|---|---|
Question (n = total, HCV monoinfection, HIV/HCV coinfection) | HIV/HCV Coinfection (%) | HCV Monoinfection (%) | Total (%) | p-value |
Willing to change HIV meds to treat HCV (n = 48, NA, 48) | 37 (77.1) | NA | 37 (77.1) | NA |
Rather take IFN than change HIV meds (n = 49, NA, 49) | 7 (14.3) | NA | 7 (14.3) | NA |
Would like to be treated for HCV at some point (n = 73, 23, 50) | 47 (94.0) | 21 (91.3) | 68 (93.2) | 0.67 |
Want to start HCV treatment within 1 year (n = 73, 22, 51) | 46 (90.2) | 15 (68.2) | 61 (83.6) | 0.02 |
Willing to wait 2 or more years to treat HCV (n = 68, 19, 49) | 9 (18.4) | 3 (15.8) | 12 (17.6) | 0.80 |
Willing to take meds twice a day (n = 77, 26, 51) | 44 (86.3) | 16 (61.5) | 60 (77.9) | 0.01 |
Willing to take meds three times a day (n = 76, 26, 50) | 33 (66.0) | 16 (61.5) | 49 (64.5) | 0.70 |
Willing to take more than 3 pills (n = 68, 22, 46) | 20 (43.5) | 10 (45.5) | 30 (44.1) | 0.88 |
Prefer IFN now rather than wait 1–2 years for FDA approval (n = 76, 25, 51) | 13 (25.5) | 4 (16.0) | 17 (22.4) | 0.35 |
Prefer clinical trial now rather than wait 1–2 years for FDA approval (n = 76, 25, 51) | 38 (74.5) | 2 (8.0) | 40 (52.6) | <0.01 |
Willing to join a phase II trial (n = 74, 25, 49) | 24 (48.98) | 4 (16.0) | 28 (37.8) | 0.01 |
Willing to take medication if not studied in HIV patients (n = 50, NA, 50) | 24 (48.0) | NA | 24 (48.0) | NA |
Willing to spend >$1000 for cure (n = 74, 24, 50) | 13 (26.0) | 5 (20.8) | 18 (24.3) | 0.63 |
Not willing/unable to spend anything out of pocket for cure (n = 74, 24, 50) | 24 (48.0) | 10 (41.7) | 34 (45.9) | 0.61 |
Prefer Hepatologist over ID Physician (n = 74, 25, 49) | 12 (24.5) | 22 (88.0) | 34 (45.9) | <0.01 |
Prefer ID physician over Hepatologist (n = 74, 25, 49) | 18 (36.7) | 1 (4.0) | 19 (25.7) | <0.01 |
Prefer MD over NP (n = 76, 25, 51) | 35 (68.6) | 20 (80.0) | 55 (72.4) | 0.30 |
Why have you not been treated? (n = 68, 19, 49) | ||||
1. Heard that new meds are coming | 15 (30.6) | 5 (26.3) | 20 (29.4) | 0.82 |
2. Worried about side effects | 7 (14.3) | 2 (10.5) | 9 (13.2) | 0.74 |
3. Doctor told me I don’t need treatment right now or can wait | 11 (22.4) | 5 (26.3) | 16 (23.5) | 0.61 |
4. I have never discussed treatment with my provider | 2 (4.1) | 2 (10.5) | 4 (5.9) | 0.27 |
5. I feel well and HCV treatment can wait | 3 (6.1) | 1 (5.3) | 4 (5.9) | NS |
6. I don’t want to take more meds | 0 (0) | 1 (5.3) | 1 (1.5) | NS |
7. I am focusing on HIV right now | 1 (2.0) | NA | 1 (2.0) | NA |
8. I don’t want others to know I have HCV | 1 (2.0) | 0 (0) | 1 (1.5) | NS |
9. Doctor told me current treatments aren’t safe for me | 3 (6.1) | 0 (0) | 3 (4.4) | NS |
10. Ongoing substance or alcohol use has gotten in the way | 3 (6.1) | 0 (0) | 3 (4.4) | NS |
Abbreviations: FDA, Food and Drug Administration; HCV, hepatitis C virus; HIV, human immunodeficiency virus; ID, infectious diseases; IFN, interferon; MD, medical doctor; NA, not applicable; NP, nurse practitioner; NS, not statistically significant