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. Author manuscript; available in PMC: 2019 Apr 1.
Published in final edited form as: Palliat Support Care. 2017 May 3;16(2):209–219. doi: 10.1017/S1478951517000219

Table 1.

Summary of Categories by Stakeholder Group

Category Family Caregivers Hospice Nurses National Thought Leaders
Essentials of Skilled Communication How it supports caregivers:
Engages caregivers in the conversation as a valued member of the team
Increases level of comfort, feelings of connection with the team, and self confidence
Characteristics of:
Nurses are personable, professional, and patient
Taking the time to conduct individualized needs assessments coupled with careful questioning and listening
How it supports caregivers:
Builds confidence in caregivers
Characteristics of:
Ability to perceive relationship dynamics and special rituals
Balancing direct information giving with readiness assessments
Appear confident to promote confidence
How it supports caregivers:
Empowers patients and caregivers
Supports continuity of care which reduces burden to caregivers
Characteristics of:
Balancing listening with other actions
Building Authentic Relationships How it supports caregivers:
Builds caregiver trust and confidence
Helps caregivers feel connected to and engaged with the healthcare team
Characteristics of:
Willingness to open up and care
Balancing professional boundaries while being genuine
How it supports caregivers:
Connects patients, families, and nurses
Promotion of caregiver self-care
Characteristics of:
Willingness to be vulnerable and initiate contact
Balancing multiple factors: goals, openness, respecting family norms, honesty in end of life outcomes
How it supports caregivers:
Caregivers feel acknowledged, encouraged, and supported
Characteristics of:
Ability to balance demands, assess and understand relationships within the family unit
Value of Expert Teaching How it supports caregivers:
Feeling of being respected, supported, and included in the caregiving process
Characteristics of:
Ability to explain information clearly and accurately
Individualizing delivery of information
How it supports caregivers:
Supports connections among family members, the caregiver, and hospice team
Good teaching leads to better outcomes
Characteristics of:
To be skilled at teaching, nurses valued the influence of skilled mentors in helping them shape their practice
How it supports caregivers:
Shapes the home hospice interaction
Characteristics of:
Hospice nurses must have ongoing meaningful learning and mentoring opportunities to integrate expert teaching into their practice
Critical Role of Teamwork How it supports caregivers:
Feeling supported, confident, and included as part of the caregiving team
Characteristics of:
Effective, consistent, and reliable teams
Including the caregiver into the hospice team
How it supports caregivers:
Promotes better outcomes
Supports family relationships
Characteristics of:
Nurses connect home hospice services with the larger health care system
Consistency in interactions with patient and family
How it supports caregivers:
Promotes inter-agency communication and continuity of care
Eases transition to hospice
Characteristics of:
Collaboration amongst team members