Table 3.

Additional examples of how aspects of research design were influenced by PPI input

Consideration	Design feature prompted by PPI input
Design of recruitment poster and materials	Culturally neutral without human representation
Data confidentiality and safety	Explicit descriptions of data protection and confidentiality measures in patient information sheet
Interviewer style, training	A personalized but professional manner was developed, to try to make the interviewee feel that their individual story was highly valued
Gender preference	Provision was made for interviewees to have a male or female interviewer, whichever they preferred
Consent form	Own copy to be supplied to participant (with thank you letter)
Location of interviews	Opportunity provided to conduct interviews at city centre location familiar to potential participants
Post interview materials	Thank you letter for participation