Table 2.
The Finnish registers and their data content used in the MATEX project
Register | Data available | Register holder | Ref. |
---|---|---|---|
Medical Birth Register | Mother’s health data (incl. Smoking habits prior to and during pregnancy, other risk factors, interventions), pregnancy, delivery, live and stillbirths, GD, BMI, infant health data by age of 7 days | THL | [30] |
Register of Induced Abortions | Data on mother, indication for induced abortion, diagnoses | THL | [38] |
Register of Congenital Malformations | Mother’s health data, pregnancy, foetus/child, congenital anomalies and birth defects, diagnoses (ICD codes) | THL | [31] |
Care Register for Health Care | Data from hospitals and special health care, diagnoses | THL | [33] |
Register of Primary Health Care Visits | Data outpatient health care visits, diagnoses (available since 2011) | THL | [34] |
Cancer Register | Persons with cancer, data on cancer type and death certificate | THL | [32] |
Cause-of-Death Register | Causes of death, death certificates | Statistics Finland | [36] |
Register of reimbursements for Prescription Medicines | Purchases of prescription medication eligible for reimbursement | KELAa | [35] |
Finnish Maternity Cohort | Serum bank, data on mother, sampling date, expected due date, previous pregnancies | THLb | [42] |
Population Register | Address history | Population Register Center | [37] |
aFinnish Social Security Institution; bFrom June 2017 the samples will be transferred to the Biobank Borealis of Northern Finland, established and maintained by the Northern Ostrobothnia Hospital District, the University of Oulu, NordLab and the hospital/healthcare districts of Lapland, Länsi-Pohja, Central Ostrobothnia and Kainuu