Table 1.

Summary of patient stakeholders’ perspectives.

Themes	Patient stakeholders’ perspectives
1. Views about patient-centred care	• Had not heard of the term ‘patient-centred care’ prior to being part of the research advisory group. It is essentially a focus on the relationship between a physician and a patient.
2. Roles of patients and physicians in patient-centred care	• Two terms describe the roles of patients and physicians: ‘communication’ and ‘transparency’. Different degrees of patient involvement in patient-centred care are warranted depending on the reason for treatment.
3. Patient stakeholders in patient-centered outcomes research	• Involving patients from the beginning and engaging them as active members of the investigative team offers a unique advantage.
4. Acceptability of patient-centred care	• Increased long-overdue popularity of patient-centred care is warranted.
5. Harms and benefits of patient-centred care	• No obvious harms noted. Physicians must determine whether the patient is capable and has the information needed to make a good treatment decision.
6. Impact of patient-centred care on the quality of care	• Quality of care can improve if a patient has a say in his treatment. It can lead to increased satisfaction with the treatment decision and less regret.
7. Role of patients in decision-making	• A more central role for patient is desired in decision-making. Patient must be presented with all treatment options and complications/side-effects.
8. Experience and opinion in participating patient-centered outcomes research	• Positive experience with being a part of the research advisory board. Primary reason for participation was being able to help prostate cancer patients in the future.
9. Recommendation for patient-centered outcomes research	• Direct recruitment of patients for research advisory board or study participation from doctor’s offices can be more beneficial than community outreach events or seminars.
10. Impact of patient-centred care on cost	• Cost may be decreased using this approach as patients will be able to pick a possibly timelier, cost-conscious, or less invasive option when presented with all treatments. However, it is possible that cost will not be affected if the patient has medical insurance.