Table 2.

Why we should better define advanced PD

For patients

Provide better biomarker based diagnostic and prognostic evaluation

Improve acceptability of stage (terminology)

For health care professionals:

Improve and consolidate the criteria for diagnosis of APD among clinicians providing standardised criteria

Develop specific pathways which engage movement disorder specialists/“parkinsonologists” so that appropriate guidance for management is initiated early including multidisciplinary services

Provide guidance for appropriate and timely implementation of advanced therapeutic options

Develop appropriate toolkits and scales

For health care providers

Early evaluation of relevant datasets in appropriate group of patients when described as advanced therapies

Facilitate early reimbursement of therapies with reasonable evidence base in appropriate patient groups

Define APD in WHO ICD coding handbook

For developing a true holistic concept

Improve patient care and carer quality of life (affected by the term “advanced” with implications on lifestyle, prognosis as well as social interaction)