Table 2.
Summary of reviews identified
| Paper | Aim of the review | Dates of search | Databases and other sources | Search terms | Language restriction? | No. papers reviewed | No. HRQoL measures identified | No. generic HRQoL measures | No. HIV-specific measures |
|---|---|---|---|---|---|---|---|---|---|
| Carabin et al. (2008) [17] | To assist clinicians in choosing the most appropriate instrument to measure health related quality of life among people living with HIV. | Not stated | OVID, Pubmed and ERIC English language | Not stated | English and Spanish | Not stated | 17 | 6 | 11 |
| Clayson et al. (2006) [4] | To review existing HR-QOL measures reported in the HIV/AIDS literature since 1990 and identify those most worthy of consideration for use in clinical trials. | 1990-not stated | General abstract databases such as MEDLINE, PsycINFO, INSPEC, EMBASE, CINAHL PRO instrument databases such as the On-Line Guide to Quality of Life Assessment (OLGA) and the Quality of Life Instruments Database (QOLID) |
Not stated | Not stated | Not stated | 34 | 17 | 17 |
| Cochrane Library Database International Society for Quality of Life Research and the International Society for Pharmacoeconomics and Outcomes Research abstracts and conference proceedings Specific HIV-related journals, including AIDS, AIDS Care, International Journal of STD & AIDS and Journal of Acquired Immune Deficiency Syndrome. | |||||||||
| Colautti et al. (2006) [18] | To review validated questionnaires to assess health related quality of life in HIV/AIDS patients | Not stated | PubMed, Medline and Medscape | “HRQL”, “questionnaire” and “HIV” | None | Not stated | 20 | 9 | 11 |
| Davis & Pathak (2001) [19] | To provide a comparative evaluation of psychometric properties of four HIV disease–specific quality-of-life (QoL) instruments. | Not stated | MEDLINE, Health Star, International Pharmacy Abstracts, Social Sciences Citation Index, Current Contents Manual reference list search |
Not stated | Not stated | Not stated | 4 | 0 | 4 |
| Drewes et al. (2013) [3] | To provide a comprehensive summary of the methodological approaches used to study the QOL of people with HIV and AIDS based on published research. | To early 2011 | PubMed and PsycINFO | “HIV/AIDS,” “quality of life,” and related concepts, like “well-being,” “life satisfaction,” and the names of established QOL instruments. | English abstract | 852 | >40 (but only report on the 14 most commonly used QOL measures) | 8 | 6 |
| Gakhar et al. (2013) [12] | To provide an overview of the Health Related Quality of Life tools available, the methods used for validation, the impact that ART has had on the HRQOL of HIV-infected people, as well as looking at some of the most important adverse effects of ARVs and co-morbidities. | Not stated | PubMed, Web of Science, Cochrane, MEDLINE and Scopus. Manual reference list search Internet databases to look for other HRQOL tools (http://www.proqolid.org). |
Included “HIV,” “HRQOL Measures,” “quality of life” and “health status.” | English | Not stated | 41 | 23 | 18 |
| Robberstad & Olsen (2010) [13] | To review the existing evidence on health related quality of life in HIV/AIDS patients in sub-Saharan Africa and consider how this information is used in the economic evaluation literature. | Not stated | PubMed, Embase and ISI Expert input |
“HIV OR AIDS”, “Africa south of the Sahara” AND “health related quality of life” | Not stated | 29 | 24 | 6 | 18 (only describe 3) |
| Simpson et al. (2013) [11] | To identify and classify PRO instruments used to measure treatment effects in clinical trials evaluating NNRTIs. | March 2003–Feb 2013 | PubMed Manual reference list search |
Included a combination of MeSH terms for HIV [HIV OR HIV infections], MeSH terms associated with PROs/instruments [questionnaires OR interviews as topic OR quality of life OR patient satisfaction OR self-evaluation programs], Substance Names of NNRTIs [efavirenz OR nevirapine OR delavirdine OR etravirine OR rilpivirine OR efavirenz, emtricitabine, tenofovir disoproxil fumarate drug combination], and clinical trial Publication Types [clinical trial OR clinical trial, phase IV OR clinical trial, phase III OR clinical trial, phase II OR controlled clinical trial OR randomized controlled trial] | English | 26 | 8 | 4 | 4 |
| Skevington & O’Connell (2003) [20] | To address issues surrounding the measurement of quality of life of people living with HIV and AIDS and discuss the properties of suitable instruments | Jan 1995–May 2000 | EMBASE, MEDLINE, the Web of Science (Version 4.1), PubMed. And Psychlit | ‘quality of life’ with ‘HIV’ and/or ‘AIDS’ Names of particular QOL scales (e.g. Euroqol, SF-36) AND HIV/AIDS |
Not stated | Not stated | 21 | 10 | 11 |
| Wu et al. (2013) [10] | To examine the responsiveness of two health-related quality of life (HRQL) instruments used in clinical trials involving HIV-infected adults: the HIV-targeted Medical Outcomes Study HIV Health Survey (MOS-HIV), and a generic measure, the EuroQol-5D (EQ-5D). | 2001–2010 | PubMed Manual reference list search |
Included a combination of MeSH terms for HIV [HIV OR HIV infections], instrument names [Euroqol, EQ-5D, MOS-HIV], and clinical trial Publication Types [clinical trial OR clinical trial, phase IV OR clinical trial, phase III OR clinical trial, phase II OR controlled clinical trial OR randomized controlled trial] | English | 17 | 2 | 1 | 1 |