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. 2017 Nov 21;17:763. doi: 10.1186/s12913-017-2719-9

Table 2.

Service users’ experience of continuity. Themes represent continuums from good to poor continuity

Theme Good continuity Poor continuity
Description Subjective experience Description Subjective experience
Relationship Trusting relationship with one or a few professional helpers over time Mutual knowledge and respect
Feelings of trust and safety
Perceiving support as helpful
Frequent breaks with therapist or contact person(s) Having to tell your personal story again and again is frustrating
Having to relate to new persons provokes anxiety
Feeling rejected
Getting the impression that the professional helpers do not care
Setback in terms of diagnostic evaluation and treatment
Timeliness Help when needed
Not having to wait
Feelings of relief
Avoid negative consequences of waiting too long
Being kept waiting
Not knowing what is going to happen
Worrying about problems and upcoming contact with services
Experiencing challenges with managing mental health and related problems
Suffering and worsening of problems
Risk of suicide
Mutuality All involved parties take initiatives
Having an opportunity for contact whenever something comes up
Having a say in decisions
Feeling that the professional helper is reliable and cares about you
Feeling that you have a say in decisions
Always being the one who has to take the initiative in order to make things happen Feelings of frustration and indifference, feeling that you have to ‘fight’ the system
Feeling ignored because of professional helpers who do not get in touch
Choice Having the opportunity to choose among an array of options regarding where to be treated and what kind of support to get
Having the opportunity to influence decisions
Having the possibility of increasing personal continuity by making individual choices suited to your situation and context
Feeling that the situation is created according to your needs, both regarding treatment and practical aspects Having no choice regarding decisions about where, when and how to get help
No possibility of influencing decisions about contact persons, treatment and support
Following the rules made by the system, for instance when being transferred from one service to another
Feeling ignored
Feelings of indifference or opposition towards professional helpers, treatment and the system
Starting to ignore the system and its rules
Knowledge Knowing about evaluations and future plans
Getting information about scheduled meetings and support interventions well ahead of time
Knowing who is communicating about you, and how and why
Understanding what is happening and what is going to happen
Feeling more secure and being more secure
Experiencing predictability in practical terms
Not being informed about what is happening, and why and how
Not knowing how or whether the involved parties communicate about you or your situation
Feelings of confusion, distress and insecurity
Feelings of tiredness and indifference