Table 2.

Data collection schedule

Outcome parameter	Data collection method	T0	T1	T2
Patient
Disease severity, perceived symptoms	ESAS-PD	X	X	X
	Hoehn & Yahr, Schwab & England	X	X	X
Functional Assessment	FACT-G	X	X	X
Experiences with palliative care, Quality of Care	Semi-structured interview	X	X	X
Quality of Life	PDQ 8	X	X	X
Family caregiver
Experiences with palliative care, Quality of Care	Semi-structured interview	X	X	X
Perceived symptoms of patient	ESAS-PD	X	X	X
Caregiver Burden	ZBI	X	X	X