Table 1.
Characteristics of participants who completed posttest disclosure survey and follow‐up interview
| Completed 2‐montha | Completed 12‐monthb | Participated in interview | |
|---|---|---|---|
| N (%) | N (%) | N (%) | |
| Age, years | 48.8±14.5; 20–73 | 48±13.6; 20–73 | 47.9±10.9; 36–72 |
| Sex | |||
| Male | 9 (39.1) | 11 (42.3) | 1 (9.1) |
| Female | 14 (60.9) | 15 (57.7) | 10 (90.9) |
| Had children | |||
| No | 8 (34.8) | 8 (30.8) | 4 (36.4) |
| Yes | 15 (65.2) | 18 (69.2) | 7 (63.6) |
| Personal history of cancer | |||
| Colon | 6 (26.1) | 6 (23.1) | 4 (36.4) |
| Other cancersc | 2 (8.7) | 2 (7.7) | 3 (27.3) |
| None | 15 (65.2) | 18 (69.2) | 4 (36.4) |
| Number of family members with cancer | |||
| ≤1 | 5 (21.7) | 5 (19.3) | 1 (9.1) |
| 2–3 | 18 (78.3) | 21 (80.8) | 10 (90.9) |
| Education level | |||
| Less than college | 6 (26.1) | 8 (30.8) | 3 (27.3) |
| Some college | 10 (43.5) | 10 (38.5) | 3 (27.3) |
| College graduate | 7 (30.4) | 8 (30.8) | 5 (45.5) |
| Unknown | – | – | – |
| Race | |||
| Caucasian | 15 (65.2) | 17 (26.9) | 10 (90.9) |
| Non‐Caucasian | 2 (8.7) | 2 (7.7) | 1 (9.1) |
| Unknown | 6 (26.1) | 7 (26.9) | – |
| Participantd | |||
| CRC case | 4 (17.4) | 4 (15.4) | 4 (36.4) |
| Affected relative | 2 (8.7) | 3 (11.5) | 3 (27.3) |
| Unaffected relative | 16 (69.6) | 19 (73.1) | 4 (36.4) |
| MMR gene statuse | |||
| Positive for pathogenic variant | 13 (56.5) | 14 (53.8) | 10 (90.9) |
| Negative for pathogenic variant | 10 (43.5) | 12 (46.2) | 1 (9.1) |
a
One participant completed the 2‐month but not the 12‐month posttest disclosure survey.
b
Four participants completed the 12‐month but not the 2‐month posttest disclosure survey.
c
Participants diagnosed with biliary/renal, ovarian, stomach, pancreas, bile duct, or small bowel cancers.
d
Case = participant with colon cancer and first enrollee of the family; relative = enrolled family member.
e
MMR gene and GenBank accession numbers are: MLH1 NM_000249.3, MSH2 NM_000251.2, MSH6 NM_00179.2, PMS2 NM_000535.5.