Table 2. Descriptive Information and Reliability Data for Study Measures.
| Measures | n | Cronbach's α | % of the sample with floor effects (high functioning) | % of the sample with ceiling effects (low functioning) | M (SD) | Administration Time in seconds Mdn (SD) |
|---|---|---|---|---|---|---|
| Neuro-QoL | ||||||
| Satisfaction with Social Roles and Activities CAT* | 483 | -- | 19.3 | 0.0 | 48.94 (8.49) | 37.0(54.97) |
| Satisfaction with Social Roles and Activities SF* | 482 | 0.88 | 15.8 | 0.4 | 48.16 (6.69) | 54.0 (40.15) |
| Ability to Participate in Social Roles and Activities CAT* | 485 | -- | 11.5 | 0.0 | 48.01 (8.63) | 46.5 (79.91) |
| Ability to Participate in Social Roles and Activities SF* | 481 | 0.94 | 29.9 | 0.4 | 48.87 (8.69) | 45.0 (37.83) |
|
| ||||||
| COMPARATOR MEASURES | ||||||
| Generic Self-Report Measures | ||||||
| EQ5D Index Score*° | 508 | 0.73 | 22.8 | 0.2 | 0.81 (0.15) | - |
| EQ5D Health Scale*° | 508 | - | 8.9 | 0.6 | 79.49 (16.70) | - |
| Rand 12 PHS* | 510 | 0.84 | 0.0 | 0.0 | 52.68 (7.63) | 45.0 (67.84) |
| Rand 12 MHS* | 510 | 0.84 | 0.0 | 0.0 | 53.93 (9.76) | 45.0 (67.84) |
| WHODAS | 476 | 0.94 | 19.5 | 0.0 | 21.13 (9.96) | 70.0 (59.88) |
| Clinician-Rated Measures | ||||||
| UHDRS Motor | 496 | 0.97 | 9.9 | 0.2 | 26.14 (23.56) | - |
| UHDRS Functional Assessment | 338 | 0.95 | 22.8 | 0.3 | 19.03 (6.38) | - |
| UHDRS TFC | 508 | 0.72 | 11.6 | 1.0 | 8.94 (3.30) | - |
|
| ||||||
| COMPOSITE MEASURES | ||||||
| Social Composite - Self* | 479 | 0.81 | 0.0 | 0.0 | 50.07 (7.98) | 36.0 (22.83) |
| Social Composite - Clinician* | 464 | 0.46 | 28.9 | 0.0 | 50.17 (7.98) | - |
Note. SRA = Social Roles and Activities; CAT = Computer Adaptive Test; SF = Short Form; PHC = Physical health Composite; MHC = Mental Health Composite; UHDRS = Unified Huntington's Disease Rating Scales; TFC = Total Functional Capacity
*
higher scores = better functioning
°
the paper form of the EQ5D was used for administration and timing data was not recorded