Table. Baseline Participant Characteristics.
Participant Characteristic | No. | No. (%) | |
---|---|---|---|
AD-only (n = 209) |
PREPARE Plus AD (n = 205) |
||
Demographics | |||
Age, mean (SD) | 414 | 71.5 (7.9) | 70.7 (7.7) |
Women | 414 | 19 (9) | 19 (9) |
Race/ethnicity | 413 | ||
White | 122 (59) | 113 (55) | |
African American | 42 (20) | 46 (22) | |
Latino/Hispanic | 17 (8) | 16 (8) | |
Native American | 2 (1) | 3 (1) | |
Asian/Pacific Islander | 13 (6) | 13 (6) | |
Multiethnic/other | 12 (6) | 14 (7) | |
Education ≤high school | 413 | 40 (20) | 34 (16) |
Limited health literacy | 411 | 44 (21) | 39 (19) |
Finances, not enough to make ends meet | 412 | 25 (12) | 24 (12) |
Social standing 1-10 score, mean (SD) | 407 | 6.6 (2.0) | 6.5 (2.0) |
Religious, fairly to extremely | 410 | 77 (37) | 75 (37) |
Spiritual, fairly to extremely | 412 | 130 (63) | 125 (61) |
Social support | |||
In a married/long-term relationship | 414 | 100 (48) | 87 (42) |
Have adult children | 413 | 141 (67) | 133 (65) |
Have a potential surrogate | 414 | 198 (95) | 184 (90) |
Health status | |||
Self-rated health, fair-to-poor | 412 | 55 (27) | 65 (32) |
IADL difficulty score 0-8, mean (SD) | 413 | 1.1 (1.8) | 1.0 (1.5) |
ADL difficulty score 0-7, mean (SD) | 412 | 1.1 (1.4) | 1.1 (1.3) |
Depression, PHQ2 score 0-6, mean (SD) | 413 | 0.8 (1.3) | 1.0 (1.5) |
Anxiety, GAD2 PHQ2 score, 0-6, mean (SD) | 413 | 1.1 (1.6) | 1.2 (1.7) |
Prior planning activities | |||
Completed a will | 407 | 104 (51) | 94 (46) |
Made funeral arrangements | 408 | 62 (30) | 65 (32) |
Prior ACP documentation | 414 | 109 (52) | 103 (50) |
Legal forms (ie, advance directives) and orders (ie, POLST) | 89 (43) | 73 (36) | |
Documented discussions about ACP | 61 (29) | 63 (31) | |
Internet access | |||
Access to the internet | 414 | 79 (38) | 87 (42) |
Abbreviations: ACP, advance care planning; AD, advance directive; ADLs, activities of daily living; GAD2, generalized anxiety disorder 2-question anxiety screening measure; IADL, instrumental activities of daily living; PHQ2, Patient Health Questionnaire, 2-question depression screening measure; POLST, physician’s orders for life-sustaining treatment; PREPARE, patient-centered, advance care planning website.