Table 1.

SRTR Patient and Support Network Requests

Data and Statistics Requests	Number
Average or median wait or shortest wait	70
General information or interpreting statistics	60
Survival or success rates	38
Counts or volume of transplants	37
Data for a specific disease or condition	35
Program-specific reports	28
Patient qualifications and characteristics for transplant	19
Annual Data Report	17
Data based on blood type	14
Long-term survival or longest survival	14
Data based on age or age limits	12
Average or median MELD	8
Explain an abbreviation	7
Explain “expected” (risk adjusted) outcome	5
Total	364
Requests about Finding a Program or Region
Finding a program or contact information	76
Interest in multiple listing	27
Interest in a good or best program	12
How to choose a program	8
Variation in program waitlist acceptance	8
Finding an OPO or region	7
Rejected after evaluation or not evaluated	6
Total	136
General Patient Information Requests
How to get on the waiting list	101
Wants to be living donor	89
International or undocumented patient	49
How much will procedure cost	11
Insurance question	10
Soliciting/selling organs	10
Spot on the waiting list	9
Candidate for living donor	8
Living donor risks or outcomes	8
Finding a donor	6
Higher-risk or expanded-criteria organ	6
Second opinion about options	6
Outreach or sharing inspirational message	5
Thank you message (for the information)	5
Total	331

MELD, model for end-stage liver disease; SRTR Scientific Registry of Transplant Recipients; OPO, organ procurement organization.