Table 4.
Measurements classification and use in data sources (n = 108)
| Dimension | Measurement acronym | Measurement full name | Data sources (number and numbering) |
|---|---|---|---|
| Motor and neurological (n = 46) | |||
| Global | H&Y | Hoehn and Yahr | (n = 30) °1,2,3,4,5,7,9,10,13,14,16,17,18,20,21,25,26,27,31,33,34,35,38,40,41,42,44,45,50,51 |
| UPDRS-III | Unified Parkinson’s Disease Rating Scale - motor examination | (n = 41) °1,2,3,4,5,7,8,10,11,13,14,16,17,18,19,20,21,24,25,26,27,28,30,32,33,34,35,36,38,40,41,42,43,44,45,46,47,49,50,52,53 | |
| UPDRS-IV | Unified Parkinson’s Disease Rating Scale - motor complications | (n = 2) n°1,14 | |
| Gait and balance | Berg balance test | (n = 2) n°7,10 | |
| Flamingo test | (n = 1) n°38 | ||
| FGA | Functional Gait Assessment | (n = 2) n°7,10 | |
| FOGQ | Freezing of gait questionnaire | (n = 2) n°7,10 | |
| Gait speed | (n = 4) n°7,8,10,46 | ||
| PIGD | Postural Instability / Gait Difficulty scale | (n = 2) n°5,40 | |
| Tandem gait | (n = 1) n°48 | ||
| TUG | Time Up and Go test | (n = 6) n°7,10,35,38,40,47 | |
| Walk test | (n = 5) n°7,10,46,47,48 | ||
| Fine movement | Finger tapping | (n = 3) n°4,46,47 | |
| Purdue pegboard test | (n = 6) n°4,7,10,38,46,47 | ||
| Reaction time | (n = 1) n°24 | ||
| Unknown | (n = 1) n°15 | ||
| Cognition (n = 41) | |||
| Global | ACE | Addenbrooke’s Cognitive Examination | (n = 1) n°40 |
| AD-8 | Ascertian Dementia 8-item Informant | (n = 1) n°31 | |
| BDRS | Blessed Dementia Rating Scale | (n = 2) n°19,53 | |
| CAMCOG | Cambridge Cognitive Assessment | (n = 1) n°49 | |
| CASI | Cognitive Abilities Screening Instrument | (n = 1) n°24 | |
| CDR | Clinical Dementia Rating scale | (n = 5) n°3,4,6,19,30,53 | |
| Clock drawing test | (n = 1) n°4 | ||
| DRS2 | Dementia Rating Scale 2 | (n = 6) n°4,19,25,26,34,53 | |
| HDS | Hasegawa Dementia Rating Scale | (n = 1) n°24 | |
| MDRS | Mattis Dementia Rating Scale | (n = 2) n°4,26 | |
| MMSE | Mini Mental State Examination | (n = 30) °1,3,4,5,7,9,10,11,12,14,15,16,18,20,21,24,26,28,31,34,36,37,38,42,44,45,46,47,48,50 | |
| MoCA | Montreal Cognitive Assessment | (n = 9) n°1,4,5,20,34,38,40,41,43 | |
| IQCODE | Informant Questionnaire on Cognitive Decline in Elderly | (n = 1) n°24 | |
| SPMSQ | Short Portable Mental Status Questionnaire | (n = 1) n°40 | |
| TICS-M | Telephone Interview Cognitive Status Modified | (n = 2) n°31,37 | |
| Attention/ Working memory | Digit span | (n = 6) n°3,4,11,30,37,46 | |
| STROOP test | (n = 2) n°4,11 | ||
| Executive function | Comprehension | (n = 2) n°28,49 | |
| RBANS | Repeatable Battery for Assessment of Neuropsychological Status | (n = 1) n°8 | |
| Symbol digit | (n = 3) n°16,43,46 | ||
| Trail Making Test | (n = 4) n°3,4,19,30 | ||
| Verbal fluency | (n = 12) n°3,9,11,19,25,30,35,37,38,43,46,49 | ||
| Language | BNT | Boston Naming Test | (n = 5) n°3,25,30,37,46 |
| COWA | Controlled Oral Word Association | (n = 4) n°1,3,4,11 | |
| FAS | Letter-Number Sequencing and Phonemic verbal fluency | (n = 2) n°11,25 | |
| Naming | (n = 1) n°49 | ||
| NART | American National Adult Reading test | (n = 2) n°3,46 | |
| WAIS | Wechlser Adult Intelligence Scale | (n = 6) n°3,4,9,11,19,30 | |
| Memory | BIMC | Blessed Information Memory Concentration | (n = 2) n°6,19 |
| FCSRT | Free and Cue Selective Reminding Test | (n = 2) n°3,19 | |
| FOME | Fuld Object Memory Evaluation | (n = 1) n°19 | |
| HVLT | Hopkins Verbal Learning test | (n = 3) n°11,25,43 | |
| Memory | (n = 5) n°3,16,35,46,53 | ||
| RAVLT | Rey auditory verbal learning test | (n = 3) n°1,4,30 | |
| Recall | (n = 2) n°46,49 | ||
| WMS | Wechsler Memory Scale | (n = 2) n°9,30 | |
| Visual-spatial | BVRT | Benton Visual Retention Test | (n = 1) n°9 |
| CPM | Raven’s coloured progressive matrices | (n = 2) n°19,46 | |
| JLO | Benton Judgement Line Orientation | (n = 4) n°4,25,43,46 | |
| Orientation | (n = 1) n°53 | ||
| PARR | Picture Arrangement subtest | (n = 1) n°9 | |
| ROCF | Rey-Osterrieth Complex Figure test recall | (n = 1) n°11 | |
| Visual attention | (n = 1) n°19 | ||
| Unknown | (n = 1) n°15 | ||
| Psychiatric symptoms (n = 38) | |||
| Depression / Anxiety | AS | Apathy Evaluation Scale | (n = 3) n°4,32,33 |
| BAI | Beck Anxiety Inventory | (n = 4) n°18,30,33,44 | |
| BDI | Beck Depression Inventory | (n = 9) n°5,11,18,26,30,32,33,36,44 | |
| CESD-10 | Center for Epidemiological Studies Depression Scale | (n = 3) n°24,39,47 | |
| GDS | Geriatric Depression Screening scale | (n = 17) n°1,3,4,5,7,8,10,14,20,25,26,28,34,40,43,48,50 | |
| HAM-A | Hamilton Anxiety Rating Scale | (n = 2) n°33,40 | |
| HDRS | Hamilton Depression Rating Scale | (n = 3) n°4,15,33 | |
| Leeds | Leeds anxiety and depression scale | (n = 1) n°38 | |
| SCID | Structured Clinical Interview - Depression | (n = 2) n°28,40 | |
| STAI | State Trait Anxiety Inventory | (n = 4) n°18,24,39,43 | |
| UPDRS-I | Unified Parkinson’s Disease Rating Scale - mentation behavior and mood | (n = 7) n°1,14,17,25,27,43,52 | |
| ZUNG | Zung depression scale | (n = 1) n°19 | |
| TOC | OCI-R | Obsessive-Compulsive Inventory – Revised | (n = 1) n°18 |
| QUIP | Questionnaire for impulsive-compulsive disorders in parkinson’s disease-rating scale | (n = 2) n°40,43 | |
| YBOCS | Yale-Brown obsessive-compulsive scale | (n = 1) n°33 | |
| Other | CoNeg | composite negative score | (n = 1) n°29 |
| MMPI | Multiphasic Personality Inventory | (n = 1) n°29 | |
| NPI | NeuroPsychiatric Inventory questionnaire | (n = 3) n°1,34,47 | |
| QABB | Questionnaire About Buying Behaviour | (n = 1) n°40 | |
| Rush | Rush Hallucination Inventory | (n = 1) n°21 | |
| SCS | Sexual Compulsivity Scale | (n = 1) n°40 | |
| YMRS | Young Mania Rating Scale | (n = 1) n°33 | |
| Unknown | (n = 4) n°6,15,46,49 | ||
| Activities of daily living (n = 22) | |||
| ACS | Activity Card Sort | (n = 1) n°20 | |
| ADCS-ADL | Alzheimer’s Disease Cooperative Study ADL Inventory | (n = 1) n°25 | |
| IADL | Katz Instrumental Activity of Daily Living | (n = 2) n°46,47 | |
| S&E | Schwab & England activities of daily living scale | (n = 10) n°5,14,18,26,34,38,41,43,44,53 | |
| UPDRS-II | Unified Parkinson’s Disease Rating Scale - self-evaluation of the activities of daily living | (n = 9) n°1,5,11,14,26,27,40,43,52 | |
| Unknown | (n = 3) n°15,17,51 | ||
| Sleep quality (n = 11) | |||
| Actigraphy | (n = 1) n°47 | ||
| ESS | Epworth Sleepiness Scale | (n = 4) n°5,14,38,43 | |
| FSS | Fatigue Severity Scale | (n = 1) n°40 | |
| ISI | Insomnia Severity Index | (n = 1) n°40 | |
| MSQ | Mayo clinic Sleep Questionnaire | (n = 2) n°4,30 | |
| PDSS | Parkinson’s disease sleep scale | (n = 1) n°40 | |
| PSQI | Pittsburg Sleep Quality Index | (n = 2) n°21,40 | |
| RBDSQ | REM Sleep Behaviour Disorder Screening Questionnaire | (n = 2) n°38,43 | |
| SA-SDQ | Sleep Apnea Scale of Sleep Disorders Questionnaire | (n = 1) n°40 | |
| SSS | Stanford Sleepiness Scale | (n = 1) n°40 | |
| Unknown | (n = 2) n°15,24 | ||
| Quality of life (n = 9) | |||
| EQ-5D | Euro Quality of Life 5 Dimension questionnaire | (n = 2) n°14,38 | |
| Neuro-QOL | Quality of Life in Neurological Disorders | (n = 1) n°34 | |
| NHP | Nottingham Health Profile | (n = 1) n°20 | |
| PDQUALIF | Parkinson’s Disease Quality of Life Scale | (n = 3) n°14,18,40 | |
| PDQ-39 | 39-item Parkinson’s disease quality of life | (n = 5) n°7,10,20,35,40 | |
| PIMS | Parkinson’s Impact Scale | (n = 1) n°40 | |
| SF-12 | The 12 item Short Form health survey | (n = 2) n°14,20 | |
| SF-36 | The 36 item Short Form health survey | (n = 1) n°40 | |
| SWAL-QOL | Swallow-specific quality of life | (n = 1) n°40 | |
| Autonomic symptoms (n = 7) | |||
| Bowel movement | (n = 1) n°24 | ||
| COMPASS | Composite autonomic symptom Scale | (n = 1) n°40 | |
| SCOPA-AUT | Scales for outcomes of Parkinson’s Disease – autonomic symptoms | (n = 3) n°4,5,43 | |
| Unknown | (n = 2) n°15,30 | ||
| Other (n = 20) | |||
| Olfaction | Brief-SIT | Brief Smell Identification Test | (n = 2) n°24,47 |
| 16-item sniffin’ Sticks Odour Identification test | (n = 1) n°38 | ||
| UPSIT | University of Pennsylvania Smell Identification Test | (n = 6) n°1,4,5,34,39,43 | |
| Restless legs syndrome | CH-RLSQ | Cambridge-Hopkins Restless Legs Syndrome Diagnostic Questionnaire | (n = 1) n°40 |
| IRLSSG | Instrument for the Assessment of Restless Legs Syndrome Severity | (n = 1) n°4 | |
| Caregiver | CSI | caregiver strain index | (n = 1) n°35 |
| deJong-Gierveld Loneliness Scale | (n = 1) n°47 | ||
| MCSI | Multidimensional Caregiver Strain Index | (n = 1) n°35 | |
| Caregiver interview | (n = 1) n°21 | ||
| Other | Agonal state questionnaire | (n = 1) n°51 | |
| CGI | Clinical Global Impression scale | (n = 1) n°38 | |
| CIRS | Chronic Illness Resource Survey | (n = 1) n°20 | |
| GHS | Global Health Score | (n = 1) n°8 | |
| GIS | Global Impression Scale | (n = 1) n°51 | |
| Howard-Dohlman device | (n = 1) n°48 | ||
| MNA | Mini Nutritional Assessment | (n = 1) n°40 | |
| MOS | Medical outcome study | (n = 1) n°20 | |
| MSSSS | Medical Outcomes Study Social Support Scale | (n = 1) n°28 | |
| Pain | (n = 1) n°40 | ||
| PASE | Physical Activity Scale for the Elderly | (n = 3) n°7,10,43 | |
| SRRS | Social Readjustment Rating scale | (n = 1) n°28 | |
| SSCI | Stigma Scale for Chronic Illness | (n = 1) n°20 | |
| Tremor rating | (n = 1) n°4 | ||
| Visual acuity | (n = 1) n°48 | ||
| Unknown | (n = 1) n°15 | ||