Table 1.
Patient and Parent Characteristics
| Parents | Patients | p value | |
|---|---|---|---|
|
| |||
| Total Responses | N=104 | N=155 | |
| Age (yrs) | |||
| Mean±SD | 18.8±2.3 | ||
|
| |||
| Gender | <0.001 | ||
|
| |||
| Female | 80% | 57% | |
|
| |||
| Patients’ Diagnosis (n, %) | 0.510 | ||
|
| |||
| Cancer | 21 (20%) | 23 (15%)* | |
| Type 1 diabetes | 10 (10%) | 25 (16%) | |
| Congenital heart disease | 13 (13%) | 21 (13%)* | |
| Juvenile rheumatoid arthritis | 10 (10%) | 20(13%) | |
| Hematologic disorder | 16 (15%) | 15 (10%) | |
| Inflammatory bowel disease | 12 (11%) | 16 (10%) | |
| Cystic fibrosis | 5 (5%) | 11 (7%) | |
| Solid organ transplant | 6 (6%) | 7 (4%) | |
| Genetic disorders | 5 (5%) | 5 (3%) | |
| Renal disease requiring dialysis | 0 (0%) | 4 (3%) | |
| Other | 6 (5%) | 9 (6%) | |
|
| |||
| Hispanic | |||
|
| |||
| Yes | 5.8% | ||
|
| |||
| Race | |||
|
| |||
| White | 86.5% | ||
|
| |||
| Education level | |||
|
| |||
| Lower than 12th grade | 3.0% | ||
| Graduated high school | 29.3% | ||
| Associate’s degree | 17.2% | ||
| Bachelor’s degree | 28.3% | ||
| Master’s/doctoral degree | 22.3% | ||
|
| |||
| Insurance | |||
|
| |||
| Private insurance | 79.8% | ||
| State Aid | 22.1% | ||
*
One patient had both complex congenital heart disease and cancer