Table 1. Characteristics of Non-Complex CSHCN (NC) versus Children with Medical Complexity (CMC)^a.

All data represent the % of children in the group with that characteristic (i.e. “column %”) unless otherwise noted

	NC overall	CMC overall

	n=37,377	n=2499

Characteristic	Weighted n=10,291,328	Weighted n=711742
Child age – mean (SE) in years^**	10.0 (0.04)	9.0 (0.17)
Male^*	58.9	63.9

Special Health Care Needs Criteria

Needs/uses prescription medicines^**	75.7	84.5
Needs/uses more medical care than usual^**	38.1	100.0
Functional limitations more than usual^**	18.7	91.2
Needs/uses special therapies^**	17.2	84.3
Needs/uses treatment for emotional/developmental/behavioral issues^**	28.3	80.3

Functional Limitations to Daily Activities^**

Never Affected	36.8	0.9
Moderately Affected	40.1	16.8
A Great Deal Affected	23.1	82.3

Highest Household Education Level

Less than HS	11.3	8.4
HS Graduate	20.0	18.1
More than HS	68.7	73.5

Household Income, by % federal poverty level

0–99%	22.1	22.5
100–199%	21.8	22.9
200–399%	28.5	28.5
400+%	27.6	26.1

Household Characteristics

Single Mother Household	25.3	25.1
Household Language Spanish	5.7	5.9

Child Race/Ethnicity

Hispanic	16.7	16.6
Non-Hispanic, White	59.2	63.0
Non-Hispanic, Black	16.3	12.2
Other	7.8	8.2

Child Diagnosis^b

Diabetes	1.7	2.0
Asthma^**	35.6	29.1
ADHD^**	27.9	40.3
Depression^**	9.2	20.0
Anxiety^**	14.7	40.0
Behavioral Disorder^**	11.8	28.9
Autism Spectrum Disorder^**	6.0	30.2
Developmental Delay^**	13.6	62.9
Intellectual Disability^**	4.0	28.3
Seizures^**	2.1	17.3
Cerebral Palsy^**	0.9	11.4
Muscular Dystrophy^**	0.2	1.5
Down Syndrome^**	0.8	4.8
Joint Problems^**	2.4	11.0
Allergies^**	48.2	52.4
Behavioral Comorbidity^,^c**	37.6	59.9

Child Health Care Characteristics

Family Centered Care^**,^d	65.2	57.1
Patient Centered Medical Home^**,^e	44.4	23.4

Insurance^**

Private	53.6	36.4
Public	35.4	42.8
Both	7.5	19.2
Uninsured	3.6	1.7

Health Care Utilization (Last 12 months)

Number of ER visits – mean (SE)^**	0.9 (0.02)	2.0 (0.12)
Number of well child care – mean (SE)^**	1.4 (0.01)	1.9 (0.08)
Number of specialty visits – mean (SE)^**	0.7 (0.01)	3.4 (0.07)
Received All Specialty Care Needed^**,^f	96.1	90.2

Results are weighted based on standard methods for the NS-CSHCN to reflect national estimates of the US population.²⁶

All comparisons by Student’s t-test for continuous data and by Rao-Scott Chi-squared test for categorical data:

p<0.05;

^**

p<0.001.

Percentages of diagnoses will add up to more than 100% as patients may have more than one diagnosis.

Behavioral comorbidity defined as having one or more of: ADHD, depression, anxiety, behavioral disorder (i.e. oppositional defiant disorder).

Family centered care: “usually” or “always” responses to all five descriptions of the child’s medical provider: (1) spends enough time with them, (2) listens carefully, (3) is sensitive to the family culture/values, (4) provides enough information, and (5) makes the family feel like partners.²⁶

Patient centered medical home: “usually” or “always” responses to all five of the following: (1) having a usual source of care, (2) having a personal doctor or nurse, (3) obtaining all needed referrals for specialty care, (4) receiving help in coordinating health-related care, and (5) receiving FCC.²⁶

Specialty care needed: Answered “no” to needing care from a specialty doctor in the past 12 months or answered “yes” to needing care from a specialty doctor in the past 12 months and “yes” to receiving all the care from a specialty doctor that they needed.

Table 1. Characteristics of Non-Complex CSHCN (NC) versus Children with Medical Complexity (CMC)a.

Table 1. Characteristics of Non-Complex CSHCN (NC) versus Children with Medical Complexity (CMC)^a.