TABLE 4.

Representative Quotes Related to the Effect of Symptoms

Participant	Quote
Sarah	Um, each day it’s a little different but usually each day is headache, some hours it will be different than others. Sometimes it will be a little bit more and can’t really do much because they stop me. Um, memory issues sometimes, I’m having a lot of tests and finals next week and it’s just been hard and I have to do even more to memorize. Dizziness, I usually get when I stand up from like just sitting in the classroom and I’ll be walking down the hall and I’ll just get really dizzy and I’ll get like really cold and like tingly.
Jane	In the mornings I can barely wake up because I am that tired. But then at night, I stay up.…Yesterday, I woke up at 6 am for school and I had to take a nap the whole rest of the day, but then at nighttime I cannot go to sleep. I am exhausted but I cannot go to sleep.
Benjamin	Headaches are probably the number one [symptom]. There will be times where I will do a quick turnaround or quick glance and I will come back and I’m just kind of dizzy and that has never happened to me before. I am sensitive to light.…If I go out into the sun from a dark room, I’m just blinded.…When I get [headaches] I just feel slowed down, I just feel not right. I just want to put my head down. I can still get through my day fine but it is just kind of annoying.