Table 4.
N (%) | Overall (n=226) |
Invasive ventilation (n=152) |
Noninvasive ventilation (n=74) |
---|---|---|---|
Household member(s) stopped work to care for child | 202 (89) | 145 (95) | 57 (77) |
Household member(s) decreased work to care for child | 193 (85) | 134 (88) | 59 (79) |
Amount of work hours decreased | |||
10% | 17 (8) | 7 (5) | 10 (14) |
25% | 78 (35) | 64 (42) | 14 (19() |
50% | 92 (41) | 64 (42) | 28 (38) |
75% | 7 (3) | 4 (3) | 3 (4) |
90% | 7 (3) | 2 (1) | 5 (7) |
Unreported | 25 (11) | 11 (7) | 14 (19) |
Household member(s) not working/working less caused a financial burden | 203 (90) | 143 (94) | 60 (81) |
Household member(s) would work/work more if they did not have to care for child | 210 (93) | 146 (96) | 64 (86) |
Household member(s) took unpaid leave to care for child at home or in hospital | 188 (83) | 136 (89) | 52 (70) |
Days of unpaid leave household member(s) took in last year, median (IQR) | 161 (59–215) | 182 (112–215) | 71 (0–196) |
Household member(s) taking unpaid leave caused a financial burden | 183 (81) | 134 (88) | 49 (66) |
Household member(s) changed job(s) to better care for child | 187 (83) | 137 (90) | 50 (68) |
Household member(s) felt their professional opportunities were limited because of caring for child | 206 (91) | 142 (93) | 64 (86) |
HMV, home mechanical ventilation