Table 5.
Household financial hardships experienced/perceived and measures taken to defray cost of caring for child using HMV
| N (%) | Overall (n=226) |
Invasive ventilation (n=152) |
Noninvasive ventilation (n=74) |
|---|---|---|---|
| Difficulty paying for in the last year | |||
| Food | 114 (50) | 92 (61) | 22 (30) |
| Housing | 99 (44) | 61 (40) | 38 (51) |
| Utilities | 46 (20) | 21 (14) | 25 (34) |
| Utility company shut off or threatened to shut off service | 18 (8) | 11 (7) | 7 (9) |
| Believed household spent more on because they care for child using HMV | |||
| Electricity | 103 (46) | 60 (39) | 43 (58) |
| Transportation | 164 (73) | 109 (71) | 55 (74) |
| Child care for HMV child or sibling | 32 (14) | 22 (14) | 10 (14) |
| Personal/family counseling | 24 (11) | 10 (7) | 14 (19) |
| Measures taken in the last year | |||
| Decreased or deferred funds for | |||
| Utility usage | 39 (17) | 17 (11) | 22 (30) |
| Entertainment | 83 (37) | 40 (26) | 43 (58) |
| Life insurance | 136 (60) | 104 (68) | 32 (43) |
| Retirement | 51 (23) | 28 (18) | 23 (31) |
| College savings | 37 (16) | 19 (13) | 18 (24) |
| Requested a utility waiver or assistance | 12 (5) | 7 (5) | 5 (7) |
| Sold valuable item | 39 (17) | 26 (17) | 13 (18) |
| Took out another mortgage or borrowed against home | 90 (40) | 75 (49) | 15 (20) |
| Borrowed money from family/friends | 74 (33) | 46 (30) | 28 (38) |
| Obtained a cash advance or borrowed against a credit card | 32 (14) | 12 (8) | 20 (27) |
| Took a personal loan | 14 (6) | 6 (4) | 8 (11) |
| Held a fundraiser | 22 (10) | 10 (7) | 12 (16) |
HMV, home mechanical ventilation