Table 1.
Demographic characteristics of study subjects with Fabry disease, United States, 2013–2015
| Characteristic | Total N = 376 |
Females n = 242 |
Males n = 134 |
P valuea | |
|---|---|---|---|---|---|
| N | % | n (%) | n (%) | ||
| Recruitment source | 0.330 | ||||
| Paper survey | 131 | (34.8) | 80 (33.1) | 51 (38.1) | |
| Survey monkey | 245 | (65.2) | 162 (66.9) | 83 (615) | |
| Age in 2014 (in years) | 0.920 | ||||
| 18–21 | 10 | (2.7) | 6 (2.5) | 4 (3.0) | |
| 22–29 | 30 | (8.1) | 21 (8.8) | 9 (6.7) | |
| 30–35 | 55 | (14.8) | 34 (14.3) | 21 (15.7) | |
| 36–40 | 43 | (11.6) | 29 (12.2) | 14 (10.5) | |
| 41+ | 234 | (62.9) | 148 (62.2) | 86 (642) | |
| Race/ethnicity | 0.318b | ||||
| Caucasian, single race | 332 | (90.0) | 211 (88.7) | 121 (92.4) | |
| Hispanic | 18 | (4.9) | 11 (4.6) | 7 (53) | |
| African-American, single race | 4 | (1.1) | 4 (17) | 0 (0.0) | |
| Other or mixed race | 15 | (4.1) | 12 (5.0) | 3 (23) | |
| Highest level of education | 0.327 | ||||
| No school | 2 | (0.5) | 1 (0.4) | 1 (0.8) | |
| High school or less | 75 | (20.1) | 51 (21.3) | 24 (17.9) | |
| Some college or technical degree | 139 | (37.2) | 96 (40.0) | 43 (32.1) | |
| Four-year degree | 60 | (16.0) | 34 (14.2) | 26 (19.4) | |
| Graduate education | 98 | (26.2) | 58 (24.2) | 40 (29.9) | |
| Average annual household income | 0.267 | ||||
| $0–$24,999 | 58 | (17.8) | 42 (20.4) | 16 (13.3) | |
| $25,000–$39,999 | 38 | (11.7) | 20 (9.7} | 18 (15.0) | |
| $40,000–$49,999 | 32 | (9.8) | 21 (10.2) | 11 (9.2) | |
| $50,000–$74,999 | 76 | (23.3) | 53 (25.7) | 23 (19.2) | |
| $75,000–$99,999 | 47 | (14.4) | 27 (13.1) | 20 (16.7) | |
| $100,000–$124,999 | 36 | (11.0) | 23 (11.2) | 13 (103) | |
| $125,000–$149,999 | 14 | (4.3) | 8 (3.9) | 6 (5.0) | |
| Over $150,000 | 25 | (7.7) | 12 (5.8) | 13 (10.8) | |
| Any biological children | 253 | (69.7) | 178 (77.4) | 75 (56.4) | <0.001 |
| med | (IQR) | med (IQR) | med (IQR) | ||
| Number of liveborn children | 2.0 | (0–2) | 2.0 (1–3) | 1.0 (0–2) | <0.001c |
aCalculated by chi-square test with an alpha = 0.05, unless otherwise noted
bCalculated by Fisher’s exact text with an alpha = 0.05
cCalculated by Kruskal Wallis test with an alpha = 0.05