Table 2.

Participant Breast Cancer Knowledge, Whether Treatments Were Missed for Nonprovider Reasons, and Socioeconomic Profiles

Participant ID	Reported ERa	Medical record ER	Reported stagea	Medical record stage	Reported HER2a	Medical record HER2	Reported gradea	Medical record grade	Incomplete/missed treatment(s)?b	Socioeconomic factors
DFCI participants
1	Positive	Positive	2	2	Negative	Negative	3	1–2	Stopped hormonal therapy prematurely, concerns about potential side effects	Black race
										Managed care Plan
										Retired
										Some college
										Money for bills, little to spare
2	Unsure; “the desirable one”	Positive	1	2	Negative	Negative	1	2	Reports taking hormonal therapy “sometimes every other day”	White race
										Dual Medicare/Medicaid
										Disabled
										College graduate
										Difficulty paying bills
3	Negative	Negative	2	2	Negative	Negative	3	3	Missed radiation and chemotherapy treatments because of transportation and childcare issues	Black race
										Medicaid
										Disabled
										College degree
										Difficulty paying bills
4	Positive	Positive	1	1	Positive	Positive	3	3	Stopped hormonal therapy prematurely; also declined some infusional therapy for side effects	White race
										Commercial insurance
										Unemployed
										Advanced degree
										After paying bills, has enough to buy things you want
5	Positive	Positive	2	2	Positive	Positive	Don't know	2	Not applicable—Chemotherapy delayed for neuropathy by provider-patient choice	White race
										Commercial insurance
										Unemployed
										College degree
										After paying bills, enough to buy things you want
6	Negative	Negative	1	1	Negative	Negative	Don't know	3	No	Asian race
										Medicaid
										Unemployed
										Advanced degree
										Enough money for bills but only because you cut back
7	Positive	Positive	1 then 4	1 then 4	Negative	Equivocal and negative	Low/medium then high	3	Not applicable— Cancer metastasized and she was taken off her therapy	White race
										Medicaid
										Employed full time
										College graduate
										Money for bills, little spare to buy extra
8	Positive	Positive	3	1	Negative	Negative	2	2	Not applicable—Stopped hormonal therapy to get pregnant	White
										Commercial insurance
										Stay home mom and occasional work
										Advanced degree
										After paying bills, enough to buy things you want
9	Don't know	Positive	3 (but unsure)	3	Don't know	Positive	3B	3 (counted as correct)	Missed radiation and chemotherapy for transportation issues	White race
										Medicare
										Employed full-time
										Less than high school diploma
										Difficulty paying bills
10	Positive	Positive	3	2	Positive	Positive	Don't know	3	Missed some radiation treatments because she “was tired of it.”	White race
										Medicare
										Employed full time
										Advanced degree
										After paying bills, enough to buy things you want
17	Positive	Positive	4	4 (treating for cure)	Positive	Positive	Don't know	3 on biopsy, 1 on mastectomy	No	White
										Managed Care Plan
										On medical leave
										Advanced degree
										After paying bills, enough to buy things you want
18	Don't know	Negative	Between 1 and 2	2 but had path CR—counted as correct	Don't know	Negative	Don't know	3	No	White, Hispanic
										Medicaid
										Homemaker
										Less than high school diploma
										Money for bills, little to spare
CUMC participants
11	Positive	Positive	Between 1 and 2	2	Don't know	Negative	Don't know	1	No	White race
										Medicare
										Retired
										College graduate
										Enough money for bills but only because you cut back
12	Positive	Positive	3 then 4 (unsure)	Stage 2	Positive	Negative	Don't know	2	No	White race
										Managed Care Plan
										Employed full time
										Some college
										After paying bills, enough to buy things you want
13	Positive	Positive	2	2	Negative	Negative	Don't know	3	Not applicable—Reported switches in hormonal therapy for side effects but good compliance	White race
										Medicare
										Employed full time
										Some college
										After paying bills, enough to buy things you want
14	Don't know	Not available	1	Not available	Don't know	Not available	Don't know	Not available	No	White race
										Medicare
										Retired
										Some college
										After paying bills, enough to buy things you want
15	Positive	Positive	1	1	Negative	Negative	1	1	Declined the recommended chemotherapy and hormonal therapy and opted to “make lifestyle changes instead”	White race
										Medicare
										Retired
										Advanced degree
										After paying bills, enough to buy things you want
16	Unsure; positive?	Positive	Between 2 and 3	2	Negative	Negative	Don't know	3	No	White race, Hispanic
										Medicaid
										Employed full time
										Some college
										Difficulty paying bills
Totals (for 17 with records available)	3/17 (18% did not know ER status)		4/17 (24% did not know stage)		3/17 did not know HER2 (18%)		13/17 did not know grade (71%)		Seven patients reported not starting, stopping, or missing treatments because of reasons other than their provider stopping treatment for toxicity or metastatic disease. Two of these patients reported issues with more than one component of therapy. One additional patient came off therapy to attempt pregnancy.	See Table 1

^a“Reported” = reported by the participant (bolded results are inconsistent with medical record review).

^bNot applicable = participant stopped/missed therapy for medical reasons and/or because of provider intervention.

CUMC, Columbia University Medical Center; DFCI, Dana-Farber Cancer Institute; ER, estrogen receptor; HER2, human epidermal growth factor receptor 2.