Table 2.
Sickle cell disease research and scientific panel core tier 2 measures
| Measure | Protocol age range | Protocol source |
|---|---|---|
| 1. Annual family income | 18 y and older | National Health Interview Survey |
| 2. Birthplace | All ages | American Community Survey |
| 3. Birthplace of parents | All ages | American Community Survey |
| 4. Birthplace of grandparents | All ages | American Community Survey |
| 5. Current educational attainment | All ages | National Health and Nutrition Examination Survey |
| 6. Current employment status | 16 y and older | Panel Study of Income Dynamics |
| 7. Current marital status | 18 y and older | National Survey of Family Growth |
| 8. Health insurance coverage | 16 y and older | National Health and Nutrition Examination Survey |
| 9. Marital status of primary caregiver* | 22 y and younger | Silent Cerebral Infarct Multicenter Clinical Trial |
| 10. Child-reported parental educational attainment | 11-16 y | Add Health |
| 11. Pediatric school performance* | 2-18 y | Pediatric Hydroxyurea Phase III Clinical Trial |
| 12. Years living in the United States | 16 y and older | National Health Interview Survey |
| 13. Medication inventory | 45-84 y | Multi-Ethnic Study of Arthrosclerosis |
| 14. Alcohol—lifetime use | 16 y and older | National Epidemiologic Survey on Alcohol and Related Condition |
| 15. Tobacco—smoking status | 16 y and older | Population Assessment of Tobacco and Health |
| 18 y and older | Population Assessment of Tobacco and Health | |
| 16. Substances—lifetime use | 18 y and older | National Epidemiologic Survey on Alcohol and Related Conditions |
*
New measures added by the SRSP.