Table 2.
Negative concepts with prevalence ≥10%
| Concept | Prevalence | Very impactful |
|---|---|---|
| Fear/anxiety | 80% | 42% |
| Fatigue | 76% | 44% |
| Pain | 60% | 55% |
| Difficulty with day-to-day activity | 59% | 47% |
| Impact of disease on family members | 55% | 67% |
| Difficulty with hobbies or leisure activity | 52% | 56% |
| Bothered by time required for medical care | 46% | 48% |
| Nausea | 40% | 44% |
| Economic impact | 39% | 43% |
| Low moods, sadness, or depression | 39% | 52% |
| Loss of control or reliance on others | 37% | 55% |
| Impact on sexual function | 37% | 9% |
| Difficulty with sleep | 37% | 60% |
| Weakness or deconditioning | 37% | 67% |
| Bruising | 35% | 19% |
| Changes in appearance | 33% | 33% |
| Bowel trouble (constipation, diarrhea) | 33% | 38% |
| Confusion/memory impairment | 32% | 33% |
| Separation from family or friends | 29% | 21% |
| Weight loss | 29% | 20% |
| Difficulty with role functioning | 29% | 75% |
| Skin conditions or changes | 27% | 19% |
| Difficulty engaging in social activity | 27% | 20% |
| Bleeding | 24% | 41% |
| Inability to work | 24% | 22% |
| Decreased appetite | 23% | 29% |
| Difficulty with exercise | 23% | 29% |
| Changes in taste | 22% | 42% |
| Fevers | 21% | 67% |
| Dyspnea | 20% | 44% |
| Blurry vision | 16% | 22% |
| Chills | 15% | 17% |
| Hair loss | 15% | 9% |
| Malaise | 15% | 20% |
| Feeling emotionally isolated from others | 13% | 50% |
| Sweats | 13% | 8% |
| Lightheadedness | 12% | 38% |
| Feeling unsupported by friends or family | 12% | 29% |
| Urinary frequency | 11% | 60% |