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. Author manuscript; available in PMC: 2018 Jul 1.
Published in final edited form as: Curr Rheumatol Rep. 2017 Jul;19(7):38. doi: 10.1007/s11926-017-0666-4

Table 1a.

Publications reviewed and their subcategory contribution (reviews with models and frameworks)

Author Country of First-Author Informative Component Category Subcategory Extracted
Arnstein (1969)[30] USA Ladder of citizen participation Who Type of Affiliation
How Initiation of Engagement
Method of Contribution
Level of Engagement
Hart (1992)[31] The ladder of participation How Initiation of Engagement
Level of Engagement
Hickey (1996)[4] UK Participation continuum How Type of Affiliation
Level of Engagement
Liberty (1999)[32] New Zealand Decision-making models in research How Initiation of Engagement
Level of Engagement
Boote (2002)[33] UK Levels of consumer involvement in health research How Level of Engagement
Rowe 2005)[34] UK

  1. Information flow model

  2. Summary of key mechanism variables

  3. Key engagement mechanisms classified according to structural variability

  4. Types of engagement mechanisms

 Who Type of Affiliation
How Initiation of Engagement
Method of Contribution
Level of Engagement
Hewlett (2006)[17] UK FIRST Model Who Type of Affiliation
How Method of Contribution
Level of Engagement
When Stages of Research Cycle
IAP2 (2007)[35] USA Spectrum of public participation How Level of Engagement
Oliver (2008)[29] UK Framework for describing involvement in research agenda setting Who Type of Affiliation
How Initiation of Engagement
Method of Contribution
Level of Engagement
Tritter (2009)[3] UK

  1. Matrix of involvement

  2. A model of involvement

 Who PRP Characteristics
How Initiation of Engagement
Method of Contribution
Level of Engagement
Venuta (2010)[5] Canada CIHR’s model for sustained citizen engagement When Stages of Research Cycle
Staniszewska (2011)[26] UK The complexity of PPI impact evaluation Who PRP Characteristics
How Initiation of Engagement
Method of Contribution
Level of Engagement
Anderson (2012)[36] USA Examples of models of engagement and communication for patient centric initiatives How Method of Contribution
Brett (2012)[2] UK Affects of Context and Process on impact of patient and public involvement in research Who Type of Affiliation
How Level of Engagement
When Stages of Research Cycle
Deverka (2012)[37] USA Conceptual model for stakeholder engagement in comparative effectiveness research Who PRP Characteristics
How Level of Engagement
Hayes (2012)[6] UK Briefing notes for researchers Who Type of Affiliation
How Initiation of Engagement
Level of Engagement
When Stages of Research Cycle
De Wit (2013)[18] Netherlands FIRST Model (revised) Who PRP Characteristics
How Level of Engagement
Shippee (2013)[24] USA

  1. Components of patient and public involvement in research

  2. Phases and stages of patient and service users engagement in research

 How Initiation of Engagement
Level of Engagement
When Stages of Research Cycle
Travers (2013)[38] Canada A model of research centered on community control and ownership Who PRP Characteristics
How Initiation of Engagement
Level of Engagement
When Stages of Research Cycle
Brookman-Frazee (2015)[39] USA Model of research community partnerships How Initiation of Engagement
Frank (2015)[1] USA Conceptual model of patient-centered outcomes research How Method of Contribution
Oliver (2015)[40] UK Framework for public involvement in research: multiple drivers, process and impacts Who Type of Affiliation
How Initiation of Engagement
Method of Contribution
Level of Engagement
PCORI (2015)[41] USA Sample Model addressing Fair Compensation for Engaged Research Partners: Engagement Spectrum With Examples: An ideal Moving Toward Greater Collaboration How Level of Engagement
Johnson (2016)[42] USA A model of patient engagement to support patient partnerships with researchers How Type of Affiliation