Table 1.
Overview of Resident and Family/Friend Characteristics and Pamphlet Use.
| Characteristic | Total sample, n (%) (N = 57) |
Resident, n (%) (n = 36) |
Family/friend, n (%) (n = 21) |
|---|---|---|---|
| Age, M (SD) | 65.8 (15.2) | 69.9 (11.5) | 59.0 (18.3) |
| Gender, n (%) | |||
| Male | 16 (28.1) | 14 (38.9) | 2 (9.5) |
| Female | 40 (70.2) | 21 (58.3) | 19 (90.5) |
| Relationship to resident, n (%) | |||
| Husband/wife | — | — | 5 (23.8) |
| Son/daughter | — | — | 11 (52.4) |
| Other relative | — | — | 2 (9.5) |
| Other (i.e., friend) | — | — | 3 (14.3) |
| Education level, n (%) | |||
| High school | 32 (60.4) | 23 (71.9) | 9 (42.9) |
| Postsecondary | 21 (39.6) | 9 (28.1) | 12 (57.1) |
| Primary language, n (%) | |||
| English | 56 (98.2) | 35 (97.2) | 21 (100) |
| Method of pamphlet distribution | |||
| By self | 29 (50.9) | 15 (41.7) | 14 (66.7) |
| By staff | 28 (49.1) | 21 (58.3) | 7 (33.3) |
| Percentage of sections read, n (%) | |||
| ≥50% of sections | 47 (83.9) | 30 (85.7) | 17 (81.0) |
| Sections read, n (%) | |||
| Disease definition | 43 (75.4) | 27 (75.0) | 16 (76.2) |
| Signs/symptoms | 46 (80.7) | 30 (83.3) | 16 (76.2) |
| Tips for caregivers | 41 (71.9) | 25 (69.4) | 16 (76.2) |
| Palliative approach | 47 (82.5) | 29 (80.6) | 18 (85.7) |
| Resources | 48 (84.2) | 31 (86.1) | 17 (81.0) |
| Percentage of sections found useful, n (%) | |||
| ≥50% of sections | 39 (68.4) | 24 (66.7) | 15 (71.4) |
| Sections found useful, n (%) | |||
| Disease definition | 38 (66.7) | 25 (69.4) | 13 (61.9) |
| Signs/symptoms | 38 (66.7) | 25 (69.4) | 13 (61.9) |
| Tips for caregivers | 37 (64.9) | 20 (55.6) | 17 (81.0) |
| Palliative approach | 38 (66.7) | 22 (61.1) | 16 (76.2) |
| Resources | 36 (63.2) | 24 (66.7) | 12 (57.1) |
| Number of pamphlets read per person | |||
| One pamphlet | 38(66.7) | 28 (77.8) | 10 (47.6) |
| Two pamphlets | 7 (12.3) | 3 (8.3) | 4 (19.1) |
| Three of more | 12 (21) | 5 (13.9) | 7 (33.3) |
| Pamphlets read, n (%) | |||
| Heart failure | 27 (47.4) | 17 (47.2) | 10 (47.6) |
| Advanced dementia | 21 (36.8) | 10 (27.8) | 11 (52.4) |
| COPD | 10 (17.5) | 7 (19.4) | 3 (14.3) |
| Advanced renal disease | 14 (24.6) | 8 (22.2) | 6 (28.6) |
| Frailty | 28 (49.1) | 13 (36.1) | 15 (71.4)** |
Note. Total percentages may not equal 100% due to missing responses and/or because some responses to pamphlet sections are not mutually exclusive. COPD = chronic obstructive pulmonary disease.
**
Significance < .01.