Table 6.

Key Concepts Identified in Literature, and Expert and Patient Interviews

Concept	Literature Review	Expert Interviews	Patient Interviews
Pain during menstruation	✓	✓	✓
Pain during/after sexual intercourse	✓	✓	✓
Pain unrelated to sex and/or menstruation (pelvic, back, general, headache)	✓	✓	✓
Pain during defecation	✓	✓	✓
Pain during urination	✓
Other non-pain symptoms (bloating, dizziness, nausea, vomiting)			✓
Infertility		✓
Bleeding (during menstruation, sex, or irregular)	✓		✓
Gastrointestinal disturbance (diarrhea, constipation, flatulence)	✓
Work/school limitations	✓	✓	✓
Sexual activity limitations	✓	✓	✓
Difficulty doing daily activities	✓	✓	✓
Difficulty doing leisure activities	✓		✓
Physical activity limitations	✓		✓
Social/lifestyle limitations	✓		✓
Relationships affected	✓	✓	✓
Emotional health	✓	✓	✓
Sleep difficulties			✓
Low energy difficulties			✓
Coping behaviors			✓