Table 3. Descriptive statistics of nine PETSa domain scale scores and two single-item indicators.
PETS domainb | N | Mean (SD)c | Score range | % Floor | % Ceiling | Skewness |
---|---|---|---|---|---|---|
| ||||||
Medical information (total) | 294 | 25.6 (19.2) | 0-100 | 17 | <1 | 0.67 |
HCMCd | 133 | 29.3 (21.5) | 0-100 | 17 | <1 | 0.63 |
Mayoe | 161 | 22.5 (16.5) | 0-83.3 | 17 | 0 | 0.42 |
| ||||||
Medications (total) | 307 | 10.2 (16.4) | 0-83.3 | 50 | 0 | 2.18 |
HCMC | 137 | 15.9 (20.4) | 0-83.3 | 38 | 0 | 1.48 |
Mayo | 170 | 5.5 (10.1) | 0-57.1 | 59 | 0 | 2.76 |
| ||||||
Medical appointments (total) | 310 | 11.0 (20.1) | 0-100 | 66 | <1 | 2.11 |
HCMC | 142 | 17.5 (25.4) | 0-100 | 55 | <1 | 1.37 |
Mayo | 168 | 5.4 (11.6) | 0-75 | 74 | 0 | 2.76 |
| ||||||
Monitoring health (total) | 305 | 16.8 (22.9) | 0-100 | 52 | 1 | 1.39 |
HCMC | 140 | 21.9 (25.8) | 0-100 | 44 | 1 | 1.01 |
Mayo | 165 | 12.4 (19.2) | 0-100 | 59 | <1 | 1.78 |
| ||||||
Interpersonal challenges (total) | 317 | 12.5 (18.9) | 0-87.5 | 52 | 0 | 1.77 |
HCMC | 144 | 19.4 (22.0) | 0-87.5 | 37 | 0 | 1.12 |
Mayo | 173 | 6.7 (13.4) | 0-81.3 | 65 | 0 | 2.83 |
| ||||||
Medical & healthcare expenses (total) | 287 | 36.5 (25.7) | 0-100 | 15 | 1 | 0.29 |
HCMC | 123 | 44.7 (28.0) | 0-100 | 11 | 3 | 0.05 |
Mayo | 164 | 30.3 (22.0) | 0-85 | 18 | 0 | 0.21 |
| ||||||
Difficulty with healthcare services (total) | 289 | 22.5 (14.6) | 0-75 | 14 | 0 | 0.31 |
HCMC | 132 | 24.7 (14.6) | 0-66.7 | 14 | 0 | -0.02 |
Mayo | 157 | 20.6 (14.4) | 0-75 | 15 | 0 | 0.61 |
| ||||||
Role / social activity limitations (total) | 314 | 16.5 (23.5) | 0-100 | 48 | 1 | 1.55 |
HCMC | 143 | 22.9 (27.1) | 0-100 | 39 | 2 | 1.13 |
Mayo | 171 | 11.2 (18.5) | 0-83.3 | 56 | 0 | 1.93 |
| ||||||
Physical / mental exhaustion (total) | 315 | 24.1 (24.8) | 0-100 | 31 | 1 | 0.87 |
HCMC | 144 | 33.1 (26.6) | 0-100 | 20 | 2 | 0.50 |
Mayo | 171 | 16.4 (20.3) | 0-75 | 41 | 0 | 1.17 |
| ||||||
Bother due to reliance on medicine – single item (total) | 311 | 21.4 (30.4) | 0-100 | 57 | 6 | 1.35 |
HCMC | 141 | 30.9 (36.1) | 0-100 | 46 | 14 | 0.84 |
Mayo | 170 | 13.5 (21.9) | 0-100 | 65 | 1 | 1.68 |
| ||||||
Bother due to side effects of medicine – single item (total) | 309 | 16.7 (25.3) | 0-100 | 63 | 2 | 1.43 |
HCMC | 141 | 21.5 (27.3) | 0-100 | 53 | 3 | 1.12 |
Mayo | 168 | 12.6 (22.7) | 0-100 | 71 | 1 | 1.77 |
Notes.
PETS = Patient Experience with Treatment and Self-Management.
Higher PETS scale score = more burden.
SD = standard deviation.
HCMC = Hennepin County Medical Center (Minneapolis, Minnesota USA).
Mayo = Mayo Clinic (Rochester, Minnesota USA).