Table 3. Descriptive statistics of nine PETS^a domain scale scores and two single-item indicators.

PETS domainb	N	Mean (SD)c	Score range	% Floor	% Ceiling	Skewness
Medical information (total)	294	25.6 (19.2)	0-100	17	<1	0.67
HCMCd	133	29.3 (21.5)	0-100	17	<1	0.63
Mayoe	161	22.5 (16.5)	0-83.3	17	0	0.42
Medications (total)	307	10.2 (16.4)	0-83.3	50	0	2.18
HCMC	137	15.9 (20.4)	0-83.3	38	0	1.48
Mayo	170	5.5 (10.1)	0-57.1	59	0	2.76
Medical appointments (total)	310	11.0 (20.1)	0-100	66	<1	2.11
HCMC	142	17.5 (25.4)	0-100	55	<1	1.37
Mayo	168	5.4 (11.6)	0-75	74	0	2.76
Monitoring health (total)	305	16.8 (22.9)	0-100	52	1	1.39
HCMC	140	21.9 (25.8)	0-100	44	1	1.01
Mayo	165	12.4 (19.2)	0-100	59	<1	1.78
Interpersonal challenges (total)	317	12.5 (18.9)	0-87.5	52	0	1.77
HCMC	144	19.4 (22.0)	0-87.5	37	0	1.12
Mayo	173	6.7 (13.4)	0-81.3	65	0	2.83
Medical & healthcare expenses (total)	287	36.5 (25.7)	0-100	15	1	0.29
HCMC	123	44.7 (28.0)	0-100	11	3	0.05
Mayo	164	30.3 (22.0)	0-85	18	0	0.21
Difficulty with healthcare services (total)	289	22.5 (14.6)	0-75	14	0	0.31
HCMC	132	24.7 (14.6)	0-66.7	14	0	-0.02
Mayo	157	20.6 (14.4)	0-75	15	0	0.61
Role / social activity limitations (total)	314	16.5 (23.5)	0-100	48	1	1.55
HCMC	143	22.9 (27.1)	0-100	39	2	1.13
Mayo	171	11.2 (18.5)	0-83.3	56	0	1.93
Physical / mental exhaustion (total)	315	24.1 (24.8)	0-100	31	1	0.87
HCMC	144	33.1 (26.6)	0-100	20	2	0.50
Mayo	171	16.4 (20.3)	0-75	41	0	1.17
Bother due to reliance on medicine – single item (total)	311	21.4 (30.4)	0-100	57	6	1.35
HCMC	141	30.9 (36.1)	0-100	46	14	0.84
Mayo	170	13.5 (21.9)	0-100	65	1	1.68
Bother due to side effects of medicine – single item (total)	309	16.7 (25.3)	0-100	63	2	1.43
HCMC	141	21.5 (27.3)	0-100	53	3	1.12
Mayo	168	12.6 (22.7)	0-100	71	1	1.77

Notes.

^aPETS = Patient Experience with Treatment and Self-Management.

^bHigher PETS scale score = more burden.

^cSD = standard deviation.

^dHCMC = Hennepin County Medical Center (Minneapolis, Minnesota USA).

^eMayo = Mayo Clinic (Rochester, Minnesota USA).