TABLE II.

Pain Severity in Adults^a and Children^b by Diagnosis, Sex, and Age

	Pain severity: Adults
	None	Very mild	Mild	Moderate	Severe	Very severe
Diagnosis
B-thal major	62 (30.4%)	53 (26.0%)	32 (15.7%)	34 (16.7%)	17 (8.3%)	6 (2.9%)
B-thal intermedia	6 (23.1%)	5 (19.2%)	6 (23.1%)	4 (15.4%)	4 (15.4%)	1 (3.9%)
Sex
Male	40 (31.3%)	40 (31.3%)	17 (13.3%)	18 (14.1%)	11 (8.6%)	2 (1.6%)
Female	41 (29.9%)	25 (18.3%)	29 (21.2%)	22 (16.1%)	14 (10.2%)	6 (4.4%)
Age
14–17 years	17 (47.2%)	12 (33.3%)	4 (11.1%)	0 (0.0%)	3 (8.3%)	0 (0.0%)
18–24 years	25 (32.9%)	20 (26.3%)	15 (19.7%)	9 (11.8%)	7 (9.2%)	0 (0.0%)
25–34 years	22 (31.0%)	16 (22.5%)	14 (19.7%)	11 (15.5%)	4 (5.6%)	4 (5.6%)
35–44 years	14 (23.7%)	15 (25.4%)	6 (10.2%)	13 (22.0%)	9 (15.3%)	2 (3.4%)
45–54 years	3 (15.0%)	2 (10.0%)	6 (30.0%)	6 (30.0%)	1 (5.0%)	2 (10.0%)
55–64 years	0 (0.0%)	0 (0.0%)	1 (33.3%)	1 (33.3%)	1 (33.3%)	0 (0.0%)
	Pain severity: Children
	None of the time	Once or twice	A few times	Fairly often	Very often
Diagnosis
B-thal major	30 (41.1%)	25 (34.3%)	12 (16.4%)	4 (5.5%)	2 (2.7%)
B-thal intermedia	1 (20.0%)	2 (40.0%)	1 (20.0%)	1 (20.0%)	0 (0.0%)
Sex
Male	20 (40.8%)	15 (30.6%)	9 (18.4%)	3 (6.1%)	2 (4.1%)
Female	25 (46.3%)	17 (31.5%)	6 (11.1%)	3 (5.6%)	3 (5.6%)
Age
5–7 years	14 (48.3%)	8 (27.6%)	4 (13.8%)	1 (3.5%)	2 (6.9%)
8–10 years	18 (50.0%)	11 (30.6%)	4 (11.1%)	2 (5.6%)	1 (2.8%)
11–12 years	9 (40.9%)	6 (27.3%)	4 (18.2%)	2 (9.1%)	1 (4.6%)
13–14 years	4 (25.0%)	7 (43.8%)	3 (18.8%)	1 (6.3%)	1 (6.3%)

^aPain severity as self-reported on the SF-36v2 quality of life health survey by participants aged 14+ years.

^bPain severity as parent-reported on the PF-28 child health questionnaire (CHQ) for participants <14 years.